Praise and prayer
Last night Aria was OVER-ventilated on the vent (not a  big deal).  Her progress is faster than the team can keep up with 🙂  So she will be on the 02 for 12 hours during the day and sprinting during the night.  AWESOME
Actually while it is great news the vent is on the only thing keeping us in the PICU. Â Leaving the PICU, after spending 7 months there and only there (apart from 2 days on the general ward) it kinda tough.
Aria is having dialysis today. Â This is probably the thing keeping Aria in the hospital full stop, that and her wound perhaps.
There is a plan to get Aria a speaking valve for her trach today. Â We might be able to hear her voice for the first time in months today!
Lots to praise God for and lots to bring before Him 🙂
33 Responses to “Praise and prayer”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 25 Jun at 8:49 am
Yay! Praise God for all He’s done! Aria, sweetie.. you keep going honey! You’re strong and you can do it! We’re all behind you and with you praying that you stay strong and want to go home!!! 😀 God Bless you all! <3 (hugs)
# 25 Jun at 9:29 am
What awesome news 🙂
and what an awesome child she is 🙂
Prayers for Aria to just keep on getting better and better 🙂
# 25 Jun at 2:16 pm
Awesome news!!! God is so good! Praying for you all as preparations are made for her to get home. Blessings xx
# 25 Jun at 2:54 pm
Great news, praying that these last two hurdles will be overcome and that Aria will be able to go home soon. Hope you get to hear her talk. Praise God! Lots of love Nana
# 25 Jun at 4:17 pm
Wow Aria is just doing so well!! great to hear!! GO ARIA!!
# 25 Jun at 4:49 pm
praise god for aria’s healing!! it is fantastic that she is doing so well. i hope & pray that this means she will soon be coming home to omaha home, and you can all be a family again.
love & prayers from thames, nz.
# 25 Jun at 5:16 pm
So great to hear such positive news!
# 25 Jun at 5:19 pm
She is just amazing!
# 25 Jun at 5:25 pm
Awesome news guys!!
# 25 Jun at 6:06 pm
Such good news- and isn’t it funny how you long for the day when you can leave the hospital/PICU- but as it looks like a real possibility- it suddenly gets a bit scary and strange!!
# 25 Jun at 6:21 pm
Such wonderful news.
# 25 Jun at 6:43 pm
Loving Loving Loving these latest posts – SO exciting!!!!
God is SO Good!
Love you all xxx
# 25 Jun at 7:04 pm
That is so wonderful! Aww…that would be great! Prauise the Lord! 😀
# 25 Jun at 7:05 pm
Wow, it’s really encouraging reading your blog…. God is doing daily miracles and working in Aria and your lives… wonderful. X
# 25 Jun at 7:05 pm
I meant *Praise The Lord!*
# 25 Jun at 10:16 pm
Thanks for the many many updates, love to read all the wonderful things what are happening now. Indeed all praise to God our Father!
# 25 Jun at 10:45 pm
Awesome alright!
# 25 Jun at 11:42 pm
Fantastic news. Keep oin keeping on Aria and family. Praying that aria gets out of PICU AsaP.
# 25 Jun at 11:58 pm
WATCH OUT, STAND BACK, LOOK OUT….HERE COMES ARIA!
Wow these last few posts are awesome…Aria certainly has her foot on the accelerator, going full steam ahead. Maybe exceeding the speed limit??!! Woo hoo!
Earlier on soon after the 2nd transplant when she was going at a great speed I made the comment….she may even be able to eat her own b/day cake this year….I said it kinda with tongue in cheek as she was doing so well. No need to have worried abt the tongue in cheek as she DID DO just that, actually eating her first soup before her b/day. Again Aria has shown she can pull surprises at any time.
Seems she has jumped all the hurdles & these issues holding her back right now are just small humps in the road for her to get over. Seems she has done the majority of the hard work & is on the freeway/motorway cruising along with just the odd traffic jam to get thru.
You are amazing Aria & have done so well, you make us proud, not to mention how proud your medical team & family especially your doting & supportive Mummy, Daddy & Brother feel.
Make way in the ward, Aria is heading your way, tho just for a stop over before heading home to live as a family of 4 TOGETHER under the one roof.
Love & Blessings to you all.
# 26 Jun at 1:32 am
Praise the Lord for more steps forward. Praying for more to come especially coming home to be with your family. Blessings to you all.
Judy.
# 26 Jun at 2:16 am
Thanksgiving Papa for all your love for Aria, thank you amen!
# 26 Jun at 2:35 am
I wonder what Arias first words will be???
# 26 Jun at 2:45 am
Well done Aria! keep it up.
# 26 Jun at 4:21 am
Wow it is just amazing to read your recent blogs and hear of the progress. You go Aria – such a battler. Watch out world Aria will be a force to be reckoned with in the years to come!!!
# 26 Jun at 4:26 am
Oh that’s great news, still didn’t stop me getting a little choked up when I read it though. She’s just such a little Gem.
# 26 Jun at 1:10 pm
Wonderful! Thank you Lord!
# 26 Jun at 8:12 pm
wow – 7 months in PICU… i dont even want to imagine what that medical bill is sitting at!! and the fact that it is all paid for is another BIG reason to thank God for His WONDERFUL love and answered prayers…. Thank God you dont have to sit with that financial burden and that you have the privilledge of being able to nurse your beautiful little girl to 100% health without having to worry about the bill! If He cares for the birds how much more will He not care for you!! OUR GOD IS AN AWESOME GOD!!! and then we havent even started mentioning all the miracles that have taken place throughout Aria’s life so far!! Where does one begin to say THANK YOU to our Heavenly Father!!!
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