24 hours at home and….
Aria has been home 24 hours and things are going pretty good.
Last night was pretty tough, I think Asher as a newborn was less work. Â Not much sleeping happening for either of us. Â Aria found it hard to settle and kept pulling off her toe prob off to get our attention thus making the machine alarm. Â We have rearranged the kids bedroom today and made some other changes so fingers crossed that helps.
Asher is very pleased to have Aria home but I think a bit confused and therefore uncharacteristically whingey.  It is a touch trying on our patience because we aren’t used to him being like this.
We sat Aria and Ashie down for some preschool time and she sat really well at the table and did some worksheets
The two biggest wins for the day would be firstly getting her to wear her speaking valve. Â We have only managed to keep it on her for 2 mins at a time but we managed to convince her of the need to have her voice (after she pulled off her tummy dressings to get our attention). Â So she has been wearing the valve for a good couple of hours now and seems to be used to it. Â We have been able to hear her voice and she is using more of her words.
Secondly her urine output seems to of increased heaps. Â I had to change her nappy/diaper in the middle of the night and this morning there was another very full one. Â Her ankles and legs seem lots less puffy and softer to the touch. Â Of course we aren’t weighing her nappies like in hospital but we ‘know’ her output pretty well from feel and can tell it has improved.
Hamish and I have found the whole thing rather stressful to be honest. Â The house was a complete tip with all the consumables and equipment needed. Â SO thankful for God’s timing in having Christine here. Â She has tidied and organised all the stuff we brought home from hospital (a lot) and helped with the kids room. Â Very grateful for her servant heart. Â Not sure how we would of managed to be honest without them being here.
Thanks for all the lovely comments, we really appreciate the support.
28 Responses to “24 hours at home and….”
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# 16 Jul at 2:23 pm
Gorgeous picture – and encouraging post – is that a toothbrush or a lollipop in Missies mouth? Hope things settle into a steady routine soon and you’re able to get consistent sleep.
# 16 Jul at 2:32 pm
That would be a pink marker.
# 16 Jul at 2:35 pm
You know what she looks like in that photo? A little kid. No hospital beds, no IVs… just a couple of kids playing. So happy for you guys!
# 16 Jul at 2:36 pm
Thank you so much for keeping us all up to date with your great posts. For the first night out of hospital I think it is all going really well and you are such amazing understanding parents. Well done everyone.
# 16 Jul at 2:47 pm
Next big move, NEW ZEALAND here we come!!!!!!!!!!!!,you guys are just amazing.xxxxxxx
# 16 Jul at 2:48 pm
It sounds like you’re doing amazingly well. I can imagine all the change would be very stressful and I hope that everyone is able to adjust quickly. Fantastic news about the increased urine.
# 16 Jul at 3:01 pm
Take it slowly, just a day at a time.Or better still, just an hour at a time. We will get our prayer team on the job, praying for the huge adjustments necessary. Must be tough on Asher too, having his world suddenly “invaded” even if he does love the little “invador” to bits! Just give him time, and perhaps a spell outside the house just Ashie and a grown up to give him full attention.
# 16 Jul at 3:11 pm
Praying for you all at this time of transition.
The Bracefields
# 16 Jul at 3:20 pm
Well, It is just so lovely to see photo’s of Aria home with you!!! How incredible is that!!! I am sure you are so tired today 🙁 but am sure the sleepless, mischief and tantrums own’t last forever & it’s good healthy family stuff!! When we move somewhere new there is always a little apprehension, excitement and often little sleep those first few nights, am sure Aria will settle soon…. such a big change from hospital – and the nursing staff at home (aka Mum and Dad!) is likely a wonderful novelty for Aria!!!
You guys are just doing amazing – I hope tonight is a much better night. As always, love and thoughts are with you all xxx
# 16 Jul at 3:21 pm
It’s so good to see a picture of Aria at home! I’m sure things will be stressful for a while, but hopefully things will get better, & that Aria will continue to improve like she is now! It’s amazing to see the difference in her from January to now! God is very good! God Bless!
# 16 Jul at 3:45 pm
How wonderfully you are doing- SO much to think of/cope with/monitor etc. God’s timing and provision is wonderful too- with having your helpers there right at the right time. Enjoy each day- and don’t expect too much of yourselves. Bless you heaps
# 16 Jul at 4:01 pm
A family together again. That has been our prayer for so long and now that Aria is home it has come to pass.It will take both Aria and Asher some getting used to but what a blessing it has been to witness these miracles.Praying for your needs.
# 16 Jul at 4:20 pm
I love this photo. It looks so normal… I know how hard it is to bring a child home. I go through it every time I pick up another broken child to come home to our house. What works for us is slowly night by night integrating them into a routine that works for us and the other children we have in our care. I know our situation is a bit different but it does get better.
Praying for you that it does get easier and the potholes fewer. Blessings as always,
Tesh, Chris, Mr 3, Mr 6, Miss .8
# 16 Jul at 4:30 pm
So pleased shes home 🙂 🙂 🙂
praying that you all settle into a routine soon
God is so good 🙂
# 16 Jul at 4:34 pm
I always find the transition home stressful, yet everyone is so excited that we’re home…. but it’s not easy. It’s so great you work as a team and to have an Christine with you right now is awesome. Yeah for continued urine output and it’s just so amazing to see this photo – praying for you as you all adjust – especially Asher as his life has suddenly changed a whole lot too. Much love guys, right behind you! X
# 16 Jul at 7:32 pm
This is so cool to see aria home with the family. i bet shes enjoying mum and dad looking after her and having her grandys there!! Go the urine output-up up and away!! Love strength and hugs for you all xx
# 16 Jul at 7:35 pm
How wonderful to have Aria home,a stepping stone to Kiwi land again.Thats great news,a big releif to be out of the hospital i guess, but a lot of work still to be done.
Well done to you all.
# 16 Jul at 8:00 pm
yea for Christine. She is so gifted with her organisational ability and great that she has been able to come to the rescue again at this time. O the sweet timing of the Lord who does all things well. We keep praying for this next stage as it too has its many challenges.XXX
# 16 Jul at 8:12 pm
Thanks Aunty Christine! xo
# 16 Jul at 9:49 pm
Good news isnt it wonderful how all is provided just at the right time (Aunty Christine) but then again this wonderful family has had lost of love and good wishes and prayers for them
# 16 Jul at 9:50 pm
oops sorry ment to say lots of love
# 16 Jul at 10:45 pm
I am dancing with delight in seeing her and you all at home and interacting! Such a blessing! Praise God! 😀 She’s looking wonderful!! 😀
# 16 Jul at 11:36 pm
Well done, you are all doing superb. Remember a great transition coming home after such a long time AND you are HOME AWAY FROM HOME so that is also different & stressfull for you all.You will get into a routine, give yourselves time & be kind to yourselves.
Sure Aria will make great strides as she will be stimulated in her new environment, a place she has not seen before.
Admire your abilities & strength.
# 17 Jul at 1:42 am
We too admire you all for the way you have handled this huge trial.
It is wonderful to see so many prayers answered!
We will be following progress with great interest
Love
Rod & Margaret
# 17 Jul at 2:00 am
Congratulations on 24 hrs at home. It may take a few days to settle into a routine, just have patience(something you have plenty of)and everything will fall into place. Thank God for Grandparents there to help out at the crucial time. Praying as always for you all,
Judy.
# 17 Jul at 2:03 am
My heart is full. That picture is better than coclate, better than winning lotto, better than anything I can think of.
# 17 Jul at 2:47 am
I am just so pleased for you! So incredible that Aria has been discharged from hospital! What a rollercoaster ride these last few months (or should i say years) have been. We pray that things will continue to improve. Special prayers that Asher will adjust quickly.
# 17 Jul at 9:48 am
Praise God for increased output. Try and have some sleep time, pray that you will get plenty of sleep soon as Miss Aria get used to her new home and dear Asher adjusts to Aria being home. Praise God for lots of help at home from Christine and Bob. God is with you always, lots of peace, miracle healings and plenty of loving care from Papa for you all amen.