Day Two
Aria’s 2nd night at home was much improved. Â Hamish managed to tape her o2 probe to her foot AND tape her sock to her foot so from 2am to 6am there were no alarms. Â And he only had to suction her once. Â The speaking valve helps expand her lungs more and we are getting out some lovely junk that has been sitting there for awhile. Â So so pleased Aria has embraced it. Â This morning she was really excited to put it back on. Â She has been saying lots of things. Â We were watching the Little Mermaid on TV and she said ‘dolphins’ when they came on. Â And she is back to saying No Way!
Asher seems a bit more settled today too which is good. Â I think we all do. Â I did Aria’s morning meds (8 of them) for the first time, it was a touch stressful but got there in the end. Â Hamish has been doing them in the morning and I have been mixing up her feeds but we are swapping today
Aria is having a nap now and then we are hoping to take her to Target for some bits and pieces. Â Yesterday we put them both in the stroller and went for a walk around our apartment complex, it was so stinkin hot though we had to come back inside.
This is Aria and Asher having dinner at their little table. Â We had hamburgers and chips last night and Aria enjoyed constructing her burger.
Urine output continues to be really good.  Next big hurdle is to get her in the walker and work more on the PT side of things.  Just being home her range of movement is much better.  Yesterday she sat on the floor and reach right over to get a toy and used her other arm to rest on, great stuff.  And she loves to sit at her table and she sits well independently using her trunk and arms to support herself.
27 Responses to “Day Two”
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# 17 Jul at 10:32 am
Wow wonderful news, am so glad for Aria and for all of you having wonderful interaction with Aria, so wonderful to hear and see pics of them both, praise God praise God, also her organs functioning well and her overall performance in just 2days at home, wow oh wow.
Thanks Anita for this report I am so overwhelmed but know there is better news each day from you praise God praise God amen!!!!!!!!
# 17 Jul at 11:32 am
Great news! keep going, and you will get there! What are her feeds? Now that her main line has gone how does she receive food? We wonder if she can “eat” her hamburger or only “construct” it!
Have a happy weekend.
# 17 Jul at 12:48 pm
That’s good news. I bet she will improve much faster at home with family.At least you are all together and do not have to be apart.God has just been so good.
# 17 Jul at 1:24 pm
Great to hear of such improvement. Will be praying for you all at Redeemer today and thanks for the photos’ really good to show the kids at church.
The Bracefields
# 17 Jul at 3:01 pm
That is such wonderful news and being home obviously suits her! So wonderful to hear of all her achievements. Can’t wait to hear how she goes with the walker.
# 17 Jul at 3:10 pm
Yay praise the Lord, awesome work Aria! You guys make such awesome doctors/nurses! Will continue to pray for good nights’ sleeps so some sanity is maintained!
# 17 Jul at 3:11 pm
That’s wonderful Anita! Keep the pictures coming too. I love see pics. of Aria & Asher together! 🙂 I know what you mean about the heat. It’s been really hot & humid here too! Keep up the good work Aria! 🙂 God Bless!
# 17 Jul at 3:17 pm
Every day/night well be getting better and better. The photos are lovely to see. Thank you.
# 17 Jul at 3:18 pm
Do we have an up and coming chef on our hands in nz?xxxxx
# 17 Jul at 3:24 pm
It is so wonderful seeing pictures of Aria at home, continuing to pray for you guys and for Aria’s improvements. God Bless.
# 17 Jul at 3:38 pm
Very cool to see such ‘normality’ for your family..very very happy for you all..blessings!
# 17 Jul at 3:46 pm
so pleased to read all this 🙂 🙂 🙂
# 17 Jul at 4:14 pm
I am so pleased that Aria is at home and doing so well. It has been a long haul for you all. It is good too that you are so well supported on this site. However, one thing worries me. Although a lot of people are praising god for his gooddness in making Aria well, I cannot see why he made her ‘unwell’ in the first place? Can you give me an exclamation why he gets praise for making her well, but is not being held responsible for allowing her to be born with so many things wrong with her. And why don’t her doctors and other members of her medical team get deserved praise too?
# 17 Jul at 4:21 pm
No way!! lol she is so beautiful… I an so glad that she is finally home with you guys;) Give her a big hug and kiss from us.
# 17 Jul at 4:24 pm
You ask some good questions Rosie and I think we will answer them in another post soon. As for praise for her team- that post is coming too- with pics of them too 🙂
# 17 Jul at 4:40 pm
Yes I agree with you Anita, Rosies questions are very good ones to aske. I believe God DID not make her this deliberatley. He has certainly been with you on theis fantastic journey the good and the bad.
What wonderful happenings in the Macdonald household, normal everyday stuff. I love to read and enjoy the goings on. Its a wonderful time for you all. God bless you all and the medical team they have done an awesome awesome job. They most certainly deserve praise as well.
# 17 Jul at 5:12 pm
Thank you, Anita. I too have travelled a similar journey with a much loved daughter. I admire and respect the way you and Hamish have dealt with everything and delight in Aria’s obviously wonderful personality. Like you, I didnt ‘blame’ anyone, or God, for her multiple disabilities when she was born, but rejoyced in the honour I had in caring for her, and all the wise things she taught me in her short life. My way of ‘praying’ has been with you all for many months as I read this site daily.
Hugs, Aroha
# 17 Jul at 6:07 pm
So exciting to read how things are going!! Heartwarming stuff. xx
# 17 Jul at 7:11 pm
I’m a bit worried about the obstruction to Asher’s oral in-take…!
🙂
# 17 Jul at 10:01 pm
By gosh you both will be great nurses ( and you are already thinking inovative ways of managing) and I hope your journey to recovery is fulfilling and full of humour
# 17 Jul at 11:05 pm
Oh Anita, it is so nice to hear you all doing such ‘normal’ family things, like walks, meals and trips out of the house! You are doing so well and it just brings tears to my eyes every time I think about Aria being home with you after such a huge journey!
# 18 Jul at 1:37 am
Well done Aria. So pleased for you all. Blessings, Judy,
# 18 Jul at 1:54 am
Clever Hamish, a typical kiwi with kiwi ingenuity…..tape = no 8 wire!!!! With earns SLEEP!!Where there’s a will there’s a way huh?
Had to smile at the look on Asher’s face whether to supstitute dummy/pacifyer doe his burger!
Can Aria swallow soft foods by mouth or all via NG?
You’re all making great strides. Well done.
# 18 Jul at 2:12 am
That is awesome to see Aria and Asher eating together. seeing the nasal tube brings back memories of James. Managing everything at home can be a challenge at times but im sure it feels good to be out of hospital! and i’m sure you will have good support. In our prayers!
# 18 Jul at 2:53 am
How utterly incredible is this? Yay!!!
xxx Lou
# 18 Jul at 3:55 am
So lovely… enjoy each moment. X S
# 18 Jul at 4:28 am
How wonderful to see Aria at home with you. Praying that things continue to improve.