Making a wish?
It is Saturday morning here and two more days until the grandparents leave. Â Yikes!
Aria is having a lunchtime nap. Â She was pretty grumpy this morning so we put her down for a nap and she was sleep in minutes.
Good news is that our nights are greatly improved. Â I only had to get up once last night. Â Mine you it did involve topping up the feed pump, stripping the bed, changing Aria’s PJs and nappy and suctioning her. Â That’s that fine though.
We got a call from Make A Wish yesterday! Â How exciting! Â They are coming to the house next week to talk to us about Aria’s wish and do the paper work. Â At this stage it is looking like a trip to Disneyworld in Florida and staying at Give Kids the World. Â I think Aria would love a family vacation and because we are coming home wishing for a certain item isn’t probably not the best idea. Â Still they will come and talk with her and us and see what she would like. Â All of this is pending Aria’s health and permission from her docs of course. Â I just can’t believe we might have the opportunity to do this thanks to TWO amazing organisations! Â Completely cool.
I am currently home alone with both kids, kinda weird.  Then I remember this used to be my full time job!  I think I am outta practice so glad one of them is sleeping!  Better go!
11 Responses to “Making a wish?”
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# 24 Jul at 12:07 pm
Life gets more normal every day doesn’t it! Have a happy weekend. Love and hugs
# 24 Jul at 12:18 pm
GOD is so good!!!!!!!!!!!!!!I am so thankful things are getting better for ALL of you.We will keep praying and you all keep trusting in him.
# 24 Jul at 12:18 pm
I hope Aria gets to go to Disney World! She would LOVE that! I’m glad to hear that your nights are better! God Bless!
# 24 Jul at 3:13 pm
I do hope Aria can get her wish granted whatever it might be. That would be great! Sounds as if that once up last night was at least one hour!! but improving all the time. Enjoy the next two days while you have the grandparents there xx
# 24 Jul at 4:46 pm
Good news on the make a wish foundation front. Glad to hear the nights are improving, and it doesn’t surprise me in the least that she needs those mid day naps,i suppose she will for a while her body has a lot of healing still to d and they do say that sleep is the best medicine after all. All the best.
# 25 Jul at 12:17 am
I am a Nurse myself and know that when the progress notes are reporting ordinary every day things the patient is well on the way to recovery. I have been reading all your daily letters and see a huge amount of progress. Glad that everything is going well.
# 25 Jul at 1:48 am
Best of luck with the wish whatever Aria(or you on her behalf) chooses. Praying that she is well enough to enjoy it. Good news on better sleeps. Blessings, Judy.
# 25 Jul at 3:23 am
Yay for sleep and am glad you have the perk of Make a Wish to look forward to. Much love my friends. X S
# 25 Jul at 4:17 am
All the best for ‘The Wish’ – so exciting 🙂
Thank you for sharing your family’s journey with all of us, it’s a privilege for us to be a part of it through prayer and spirit; in the good, meh and hard times.
🙂 wearing our purple ‘team Aria’ shirts too.
# 25 Jul at 6:44 am
Good morning McDonald family, hi Aria and Asher!
praise Papa for wonderful sleep for everyone in your household and less stress for you parents! all the best with ya vacation guys love ya!
# 25 Jul at 10:17 pm
pleased about your nights
and how exciting the Make A Wish is gonna be