Chillaxing - Aria MacDonald

Chillaxing

It has been a busy few days in the MacDonald household.  Busy and good.

Here is a random cute shot of matching PJs.

Photobucket

Aria continues to do pretty well.  O2 requirements have gone up a touch but nothing major.  Rash is so so.  I am fairly convinced it is something to do with the hospital.  It got heaps better when she left to come home and then she spent 7 hours in the treatment center and it came right back again.  Mmmmmmm.

We ventured out to dinner at Carol and Cordells on Thursday.  It was a bit nerve wracking- how would the kids behave?  Would Aria be friendly and play nicely and sit and eat dinner?  Would Asher play nice.  Hamish and I realised in the car on the way that it could be a complete disaster and we would tag team during dinner so each could eat.  We prayed after making our little plan.  Turns out, apart from Asher having a tanty about a red cup Aria had and he wanted, they behaved really well and we had a great time.   Karin and her kids were there too and we had a really nice time.

Going out to people’s houses for dinner now is actually something we can do.  Previously with TPN starting at 6pm, it wasn’t really something realistic.  Now we just chuck a tin of formula, measuring cup and jug in the bag with the pump and giving set and away we go.  No sterile gloves and a million supplies or scary central line to worry about someone tripping over and blood gushing everywhere.  Ok that never happened, but it could of and that was something that made evening outings a no go.  The freedom is nice.

Make A Wish visited yesterday.  Aria’s wish is to go to Disneyworld and Seaworld and staying at Give Kids the World.  It is tentatively booked for mid Nov.  We are hoping she will be off O2 and the trach will be gone by then.  We are super excited!  I am excited because there will be no cooking and housework for a week and it will just be a week of FUN!!!!!!!  We get picked up from home in a LIMO!!!  The kids will love it.  We took Aria on the Ferris Wheel yesterday at a sports store in Omaha and she really liked it.

Finally we went for a family swim the other day.  Here is Aria being brave and putting her toes in the water.

Photobucket

22 Responses to “Chillaxing”

  1. Carolyn O'Cain says:

    So thankful that Aria is doing so well. Thank You, Lord!!! The pictures are great. The kids look so happy to be together. Praying for your Make A Wish trip. Sounds delightful! Sending my love to you all.
    In His great love,
    Carolyn O’Cain

  2. Raylene says:

    I am so pleased you are able to enjoy a social life now. I just love both pictures you have included. The trip away will be good for you Anita and Im sure Hamish as you share the household tasks as well…. Something to really look forward to. Interesting the rash worsens in the hospital – maybe it is just that Aria prefers to be home with you guys!! XXXX

  3. Leticia says:

    Wow!!! That trip sounds like it will be the bestest.. my kids are jealous!! Praying that the trach will go soon. Interestingly Miss 4 here has a similiar thing with the rash. When she is in hospital it get worse and takes a week or two to get rid of again. Our doctors suspect it msy be either stress or a reaction to the air conditioning?!?
    Praying heaps for you all…xxx

  4. Christy Dallimore says:

    Aria looks really great in these photos!!! I am so excited for you not having to do housework or cook for a whole week! And Disneyland!!!! It will be a well deserved break for you all.

  5. Viv says:

    LOVE the sunnies little Miss A 🙂

  6. fiona says:

    How lovely to have such ‘normal’ family photos again- to be together and have fun without all the paraphernalia. Well done all of you- so lovely to hear how things are progressing

  7. Lisa Robertson says:

    Love the matching PJ’s – too cute!!! So thrilled for Aria about her wish, that is so fantastic – so brilliant that out the other side of your journey there are some fantastic treats! (not aside that the best treat of course is Aria’s continued improving health!!!) Love to you all – keep looking forward to that week of no housework and no cooking! Awesome! x

  8. Tiffany Keller says:

    Sounds like you had fun with your friends! Aria is going to be so excited to see Disney World! Take lots of pictures! Love the pictures of Aria! God Bless!

  9. jen says:

    awww your kids are so cute :)LOVE the matching pjs

    pleased the dinner went well 🙂 God is good 🙂

  10. Jess says:

    LOVE the jammies Anita! I love to match up our boys too! so nice to hear you are getting to do normal stuff all together – must be new and cool!

  11. Jo says:

    Miracle after miracle! So cool to celebrate with you!

    Make a Wish sounds fantastic! I can’t work out who is the most excited – Aria or you! Great news!

    Will keep praying about the O2 levels and the trac.

    Wasn’t Aria brave to put the toes in the water! Exciting stuff.

    Blessings, Jo

  12. Moira says:

    Oh, so gorgeous 🙂 So good to hear you’re able to get out and spend time with other families now, must be wonderful to have Aria at a stage where that is possible.

  13. Judy Palmer says:

    Love the pics and the matching PJs. Great to hear that Aria is doing so well. Praise the Lord. Very exciting about the upcoming trip to Disneyworld and that you can get out and about as a family. Praying for you all, Judy.

  14. Linda Crosbie says:

    It is so nice to see the photos. Aria always seems to look better in each one you put up over the months and weeks. Disney World trip sounds fantastic and so long you have waited for it from your to do list. Glad you are starting to realize some new normalities in your life like going out for dinner. Xxxx

  15. Shirley says:

    Gr8 photos! The swimming one really made me smile! Glad you are having normalish family time – well done team. X

  16. iliganoa says:

    Thanks for the beautiful photos of normal family time. So excited to hear all the good news, praise God for all His love for you guys. Continue to pray for Aria and for you all, amen to all your needs.

  17. Angela Robinson says:

    Too Gorgeous

    Aria is looking so great and so very Happy. that truely is a sight for sore eyes. as always sending love and warm wishes from Kiwi town

  18. nola Young says:

    o the joy to be experiencing your new ‘freedom’. a whole new life ahead!! praise the Lord for all his goodness. Each day is so precious. Our love and continued prayers

  19. charleen says:

    wow! a social life, with minimal hassles. how fantastic!!

    rash recurring only at the hospital?? hmm maybe aria has developed an allergy to hospitals. whenever i am at a hospital & i am asked about allergies, i always say yep, to hospitals!! 😉

    fantabulous that you get to go to disneyland, and in a LIMO? you will feel like royalty, or maybe hollywood celebs.

  20. Julie says:

    Great to hear all that good news and that things are going so well for you all!

  21. mary says:

    Lovely to see Aria with feet in the water after such a long time

  22. Cheap 49ers Jerseys says:

    Nice blog here! Also your web site loads up fast! What host do you think you’re using? I wish my website loaded as fast as yours.

Leave a Reply

Support Aria

There are many ways that you can support Aria.

  • Bank deposit
  • Cheque by post
  • Contact us directly
Subscribe to updates

Delivered by FeedBurner

Fundraising progress

Aria's support to date:

Progress meter: 75%

“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11