Quick Update
Has been a whirlwind week in the MacD house! Â Hospital every day, fun, not really.
Very quickly- Aria continues to do AWESOME. Â Walking heaps and crawling and a very happy chap.
AND more news. Â At clinic on Thursday they decreased her feed and added in a tin of Pediasure, a vanilla flavoured milk drink with fibre. Â It is about 200 mls/8 oz and we are getting her to drink it rather than put it into her feed bag. Â So she has been very willing and drank 100 mls in the past couple of hours!!! Â We are very much hoping she will at least drink a tin a day and be on the way to taking all feeds via mouth. Â Her eating continues to come along too.
Also she has been able to go a night or two with O2!
That’s all for today, sorry for the short post. Â BUT here’s a teaser for you- there is going to be a Very Special guest post soon! Â Stay tuned!
14 Responses to “Quick Update”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 17 Sep at 6:33 pm
Go Aria!!! What wonderful news!!!
# 17 Sep at 6:54 pm
mmmm who could resist vanilla milk!!! Awesome Aria, you are amazing!!! xxx
# 17 Sep at 7:25 pm
Such great news. Can’t wait for the guest post. Still praying prayers of thanksgiving for answered prayers. Go Aria!!!!!!!!!!!!!!!
# 17 Sep at 7:32 pm
Aria sure is one amazing little kid! You go girl!!! 😀 <3<3<3
# 17 Sep at 7:54 pm
We sure will stay tuned!
Love to you all
# 17 Sep at 8:04 pm
How awesome!! what an inredible journey you have all been on and are continuing on… i love that aria is doing so well, and really is a true living miracles…. someone said to me there’s no miracles these days i refer them to aria’s website… it’s just a true testament to the glory and grace of God…
# 17 Sep at 8:35 pm
How exciting – those oral drinks are an amazing step for Aria – well done! She continues to do amazing things. looking forward to your next update!
# 17 Sep at 9:29 pm
Well done Aria!
# 17 Sep at 9:53 pm
Praise God for big steps forward. Praying for continued improvements.
Blessings to you all, Judy.
# 17 Sep at 10:15 pm
all good news from you guys-and i guess you are having some very dear friends ‘pop in’ on you very soon! have a wonderful weekend and week ahead-go Aria, you little beauty! x x xJeannie
# 18 Sep at 2:26 am
That’s awesome. Better few posts with good news than a thousand with bad.
# 19 Sep at 3:30 pm
wonderful
pleased all is going well 🙂
May our God continue to work in your lives
# 19 Sep at 8:09 pm
That’s wonderful! 🙂 Special guest post, huh? Ooh, now you have me wondering and guessing. God Bless!
# 25 Sep at 3:47 pm
Have just tuned into channel 1 and caught the last part of Aria’s trilogy. Just wanted to say how much of an inspiration wee Aria and family are after watching only a few minutes of this! I’m a paeds nurse and often see families going thru difficult situations but after reading your blogs you have been thru more than most people go thru in a lifetime! It has brought tears to my eyes reading it!
Your daughter is beautiful and amazing… and she is incredibly fortunate to have such incredible parents that are there every step with her.
I’m blown away, what an inspiring, incredible little girl! Well done to Anita and Hamish, if only all parents cared and loved as much as you do.
xoxo