Nothing new
48 hours since Aria’s trip to the OR we still don’t have answers. Â In someways that is good and others not so good.
No bacteria has grown which is good. Â The puesdomonas that haunted her for months seems not to have reared it’s head. Â However she has been on ABX so it might be slow growing but 48 hours later it is most likely clear.
The fungus test was sent later on after being missed the first time. Â Kinda annoying since that is primarily what we were scoping for! Â So fungus is still on the table for causes and hopefully we will hear tomorrow morning.
The pathology for the biopsy of her lymph node should be back this afternoon although there are different theories as to whether that is the case or not.  As it was taken from her leg and not her lung it still maybe not tell us what we need to know.
It is kinda frustrating. Â So many tests and they keep coming back negative or they aren’t telling us the answer we want. Â We really really don’t want to biopsy her lung, that is kinda serious surgery. Â But if this 2nd round of testing doesn’t tell us answers then we might have too.
Clinically though Aria is doing great. Â Looked like her o2 wean had stalled this morning but she is doing great again and I am hoping to convince the team to put her on regular O2 this arvo. Â She managed a bit of walking and is a happy chap.
Needless to say Disney is off. Â There is no way Miss Aria is getting on a plane in 6 days time! Â We will reschedule for another time, not sure when at this stage.
So we are waiting on the Lord- it is stinkin hard. Â We are trusting in the Lord- it is stinkin hard. Â We know He has a plan for her life- it is stinkin hard. Â It’s hard, that’s ok. Â God didn’t call us to a life of fairies and rainbows. Â I was reflecting yesterday that I am actually thankfully for my suffering. Â I am no longer young and idealistic about life, thinking I have all the answers to all the problems by whipping out a few bible verses to solve the worlds problems. Yes, in fact I think I have less answers but more understanding and a deeper knowledge of how God works in my life.
Speaking of bible verses, going whip one out right now!
Romans 8:18 (New International Version © 2010)
18 I consider that our present sufferings are not worth comparing with the glory that will be revealed in us.
So looking forward to that glory!! Particularly for Aria.
13 Responses to “Nothing new”
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# 3 Nov at 12:42 pm
Waiting for answers is hard, but thankful that Aria is doing great.
Still praying for you all and sending lots of love
# 3 Nov at 1:47 pm
with you completely in the last part you wrote! I think that maybe we are both coming to that place that Job came to – Job 42:1-6! Standing with you in prayer!
# 3 Nov at 7:00 pm
standing with you in prayer also.
i can understand the stinkin hard part. you have questions that right now can’t be answered.
praying that answers will be known, and this is just another wee speedbump in aria’s recovery, not something that is a scary biggie.
# 4 Nov at 3:22 am
Praying for answers and for God to hold Aria in His healing hand. May the peace of God be with you all. Judy
# 4 Nov at 11:19 am
Praying for you all as you wait.
The bracefields
# 4 Nov at 12:17 pm
not enough words to say how much we all care for you guys and pray for you daily for strength, patience, faith,hope and trust – love, jeannie
# 4 Nov at 12:20 pm
Praying also for Aria and answers that I pray will be good ones. I know the waiting is hard but all in God’s good time.He is ever faithful.Stay strong in his word.
# 4 Nov at 12:26 pm
Sharing in His sufferings is hard… no way around that, but with the with the sufferings comes His great comfort. Praying for His peace and grace for each of you. Definitely praying for answers… Sending my love and hugs.
In His great love,
Carolyn O’Cain
# 4 Nov at 12:38 pm
Jeremiah 29:11 the special verse on Aria’s website is still true!It’s just that God and we have different definitions for the important words in that verse. There is nothing else to do but to trust He really does know what is best for us.
# 4 Nov at 1:58 pm
Sorry to hear you don’t have answers yet, but happy to hear that Aria is doing well anyway. I too am grateful for my suffering and my journey with Lara, it has enriched our lives, although I would never have chosen this journey, instead it was chosen for us. Yes, lost my idealism too, like you, but instead have been gifted with looking for the joy in the small things we used to take for granted. Thinking of you and sending hugs. (sorry about disney too)
# 4 Nov at 3:27 pm
Dear Anita, our hearts are with you and your lovely family. Jesus was not an idealist either…He was a compassionate, obedient, faithful realist. You are walking that path, and it is so hard. May God place His peace upon you. I so pray you have the right answers soon. Love Vikki.
# 4 Nov at 5:02 pm
We so feel for you all! Like the other posts have said we are happy to hear Aria is doing well and just pray for answers to come speedily. God’s timetable is always perfect, He is so often ‘a minute to midnight’. Praying for His peace and uplifting during these hard times.
# 4 Nov at 8:39 pm
Praying that God will give the doctors some answers, to tell you! Sorry to hear that Disney is off for now, but glad to know you can reschedule at some point! It’s weird, and interesting how God gets our attention, and how He draws us deeper our relationship with Him. Praying the answers come soon! God Bless!