The Plan…..
Ok, we have pretty much everything back from Mondays explorations and the conclusion is that there is something wrong with Aria. However all the tests in the world have been able to reveal only negative results. So while we all know that something is wrong with Aria we have no idea what that something is.
For now the plan is for all the treatments she is on to stop, for us to go home tomorrow if she doesn’t go backwards overnight and then wait and see if she ends up back in hospital worse than ever. If that was to happen then the next logical step everyone agrees on is to go in after a hunk of lung and get a (hopefully) definitive answer. We aren’t doing that right away because getting a chunk of lung is a pretty major undertaking and we don’t want to do further harm to her delicate lungs unnecessarily.
We like this plan, best case scenario, Aria gets better and goes from strength to strength and we’ll put this down to some random and unusual virus. Worst case we end back here in a few days/week but better off for having the family home for a time to recharge all our batteries.
This has been a weird admission, lots of big ‘what ifs’, a pretty happy PICU-bound Aria, plans changing at every turn, and no answers at the other end. It is reassuring that God knows what is going on, but sometimes we would really like it if He would share with the group.
10 Responses to “The Plan…..”
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# 4 Nov at 12:56 pm
Frustrating I know, but pleased you are all able to go home and spend time together and recharge those batteries. Praying that Aria will improve. lots of love
# 4 Nov at 1:50 pm
So glad to hear that God has answered the prayers of so many in this way. And still praying for you all – for patience and peace amidst all the uncertainties.
# 4 Nov at 2:38 pm
Thinking of you guys!
# 4 Nov at 3:10 pm
Like you say- God DOES know what is going on- and it is so wonderful to be able to lean on Him and trust Him- but boy – He doesn’t make it easy does He??! Great is His reward in heaven for those who trust Him! you guys are amazing
# 4 Nov at 4:02 pm
Praying for God to reveal the problem to the team so they know how to treat Aria. Good luck with being home together to get rested. Blessings to you all, Judy.
# 4 Nov at 4:23 pm
Thinking of you and hoping that it is viral and it has now passed. Also hope that you have no re-admitting and can get on with your form of normality with plans for Christmas and that trip to Disney. Go Aria you are a battler with so much character. XXXX
# 4 Nov at 8:10 pm
hoping & praying that aria will now be ok, & no nasties crop up.
wishing you all some great family time, & a good recharge of the batteries.
i know god will know what’s going on, & has you all in the palm of his hand.
yep, it would be nice if god told you what’s going on, but it doesn’t quite work that way.
# 5 Nov at 2:24 am
What a roller coaster you guys are on. I’m sure you never really get used to it.
# 5 Nov at 8:19 am
Praying with you and for you! SO sorry the timing of everything. God knows BEST and all will work out! We love you!!!!!!!!
# 6 Nov at 8:08 am
All in God’s timimg. I pray for today and for what God has for you. Enjoy your time together at home and that this may be all that is needed.Aria is such a fighter she can beat this too.