H-O-M-E
Aria crashed out on the floor asleep! Â This picture, taken tonight amazes me. Â This is the little girl was standing up to sleep days ago, now almost flat and asleep in seconds. Â To fast for me to get her to bed!
Coming to you live from……
HOME!!!
Aria is home and we are much more excited this time. Â She is doing really well. Â It seems surreal to see her walking around our house and laughing and exploring. Â It has been awhile since she has had that energy.
The pulmonary Doc walked into her room beaming this morning and said ‘did you see her gases today- it is like she has had a lung transplant!?’ Â Her blood gases show her lungs are more effective than they have been in a long time.
Aria is on a bi-pap machine at home now. Â She was on CPAP. Â Don’t ask me what the difference is- I haven’t figured it out. Â Whatever it is she is sleeping better and is waking up rested and happy.
Anyway, I will post a pic soon of the therapy that is helping her. Â It is kinda funny and needs a pic.
We feel so grateful and happy that Aria is doing better. Â The sleep study and possible surgery may still go ahead but the team are hoping Aria keeps improving. Â Isn’t it funny how God closes a door and opens another? Â We feel really grateful that the transplant team really stood with us and got everyone involved and worked hard to get a solution for Aria. Â Whenever we said ‘Aria is not good’ they would say ‘we agree- lets sort this!’ Â Great stuff 🙂
30 Responses to “H-O-M-E”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 30 Dec at 4:05 pm
Praise the Lord!! We are so happy and glad you are home. With a brief time there yesterday, I quite agree that hospital life….although necessary, is not good (and that is a GIANT understatement!) Keeping on with prayers!
# 30 Dec at 4:27 pm
wow – its wonderful
# 30 Dec at 4:36 pm
Praise the Lord indeed!! Wonderful news – what a huge change in a short time – God is indeed SO faithful. As you say, one door shuts and another opens, so often the way – “I know your deeds. See, I have placed before you an open door that no one can shut. I know that you have little strength, yet you have kept my word and have not denied my name. ” (Rev.3:8)
# 30 Dec at 4:38 pm
Wonderful news. We log in here all the time to get updates and pray for you even though we don’t comment each time. Go Aria !!!! Praise the Lord for her progress and for the knowledge and abilities he has given to her medical teams, and her parents of course. God bless you all.
# 30 Dec at 4:47 pm
Happy New Year, Aria and family, from New Zealand, the first country in the world to see it in!!! Hope things go from strength to strength for you in 2011! Nikki and Rob. x
# 30 Dec at 5:12 pm
That’s good news! Here’s to a better new year for you all. M x
# 30 Dec at 5:19 pm
Great news. The year 2011 is going to be a special year for all of you. Why? Because so many are praying for this for you all.Thank you God for all your blessings.
# 30 Dec at 5:23 pm
Praise God for medical people of all kinds.It is he who gives the knowledge, for them to help others. Wonderful news . Was hoping to hear some good news before we went away where we wouldn’t have a computer to catch up on what was happening.
Happy New Year to you all albeit early. our prayers are with you all. With Love.
# 30 Dec at 6:04 pm
WOO HOO!!!!!! That is so great.
# 30 Dec at 6:08 pm
This sounds really possitive so happy for you Aria, and your loving family. Hope 2011 brings you ever closer to your home in NZ.
# 30 Dec at 6:33 pm
here’s a link to the difference between bipap and cpap
http://www.buzzle.com/articles/cpap-vs-bipap-difference-between-cpap-and-bipap.html
Hope that clears thing up for you.
My mom suffered respiratory failure and we got to learn about all the different things. She couldn’t handle either bipap nor cpap and had to have a tracheostomy and use a vent when she slept. That’s a lot more common than you might think because so many people with breathing problems also have anxiety and can’t deal with any kind of mask on their faces so, though it might not feel like it, you’re pretty lucky that Aria can tolerate a mask.
I’m glad she’s doing so much better. Here’s to a happy New Year for all of you!
# 30 Dec at 6:53 pm
Such awesome news…it just makes me sooo happy! God is good and has got you guys in his arms! Love you lots and want you home but while you’re away it’s so good to know that so many people are caring for you. xo
# 30 Dec at 7:08 pm
What a New Year’s gift! My prayers that Aria keeps on improving and that you all as a family can enjoy some good times together and look forward to NZ in 2011?
# 30 Dec at 7:25 pm
Awesome!! Happy New Year MacDonald family!! What a huge year 2010 has been for you all!! X
# 30 Dec at 7:58 pm
Happy, happy New Year! Jeremiah 29:11 is still your verse!
# 30 Dec at 8:05 pm
Excellent news- great way to head into the new year.
# 30 Dec at 8:12 pm
Yay home!!! Praising God with you guys!
# 30 Dec at 8:19 pm
Praise the Lord that she is doing better! I pray that she continues to get better, & the doctors can make her headaches go away! God Bless!
# 30 Dec at 8:21 pm
What a superbly fun pic of Aria! When you said one doot shutting another opening it reminded me of the breeze of the Holy Spirit-always moving in our lives!!! So pleased with this news for you all! Praise God x x xJeannie
# 30 Dec at 9:04 pm
so pleased 🙂
# 30 Dec at 10:23 pm
Celebrating with you that you’re home. And that the little miss got some sleep too! How precious. Praise God for doctors who are fighting for all of you.
# 30 Dec at 10:33 pm
Wow! and lovely legs Aria! So pleased you are able to be at home
and feeling so much better. Happy New Year to your whole family
what a year you have all been thru!
# 30 Dec at 10:44 pm
FAnstastic news and welcome home!
# 31 Dec at 12:20 am
Wonderful news! Praise God that Aria is doing so much better – that is fantastic news! What a way to bring in the New Year. We pray that Aria continues to go from strength to strength and that God keep on protecting, encouraging and strengthening Aria and your family 🙂 Happy New Year MacDonald family! May 2011 be a year filled with HEALTH, love, peace and happiness. Blessings xx
# 31 Dec at 12:59 am
No doubt abt Princess Aria…home for Christmas, home for New year. She never fails to impress, plus add her bit of humour, the pic was sooo cute.
Seems she just needs to pop into the hosp for short stays to check the staff are on their toes & to ensure they haven’t forgotton her!!!!!
# 31 Dec at 2:56 am
so glad Aria is doing better, Happy new year to you all xoxox
# 31 Dec at 7:37 am
Great fantastic news Papa, we praise you amen!!!!!!! Just your perfect will for us all halleluia amen. Thank you Papa, we love good news and dont mind tests because then we know how much we love you eh. Blessings dear Aria, Anita, Ashe and Hamish have a wonderful great abundant blessed new year 2011, bye team aleluia!
# 31 Dec at 3:26 pm
Happy New Years McDonald Whanau. What a great way to start the New Year, all of the above. May you get all the rewards you deserve xxx
Be victorious and prosperous in Jesus name, Bless you xx
# 31 Dec at 3:54 pm
FAB news… so very pleased, wonderful, X S
# 1 Jan at 7:00 am
Fantastic news!! Praise God 🙂
oh and Happy New Year! x