D-A-D Dad! M-U-M Mum!
Two video links that might interest you.
Clown doctors at our hospital at home featuring one our lovely friends Sam and Shirley
A beautiful song and clips of the amazing people Attitude TV have filmed, including Aria.
It is a snow day in Omaha Nebraska. Â Blizzard conditions and the schools are closed and so is part of the interstate/motorway. Â The MacDonalds are tucked safely inside watching the snow fall and the wind blow. Â And probably overdoing it on the heating front so now we are half cooking and the kids are running around half clothed!
As well as it being a snow day it is also a tough day.  Aria’s rash is still pretty nasty and her outputs are high, the highest in awhile, they are not improving despite being off feeds for almost 5 days.  We have also been waiting for the phone NOT to ring.  Hospitals work under the assumption no news is good news regarding test results and in particular the biopsy yesterday for Graft V Host.
But of course the phone has rang for a host of other reasons.  Firstly the dietitian rang to say TPN will be delivered tonight (which made me cry after I hung up the phone), Aria’s prograf levels are too low increase the dose, TPN is on the way, TPN is here please buzz us in etc etc.
BUT so far no news about the biopsy and it is 5pm now.  Kinda starting to feel relieved.  Aria’s colon did show some irritation and inflammation which could be the virus still or could be G V Host.  We are hoping for the virus because if it is lingering in her colon it is likely lingering in her small bowel therefore explain the continued dumping.  Aria’s colon and small bowel are not connected so I am hoping I am understanding it right.
Still today I found myself struggling so much with this dumping. Â I just really wish it would stop and get better but there are no signs of that. Â This bowel is so precious and I just can’t handle there being any concern over it. Â There is a constant battle in my head- Lord I trust you but I can’t take this! Â Waiting on the Lord is hard, so hard.
Aria has 4 hours off her pumps. Â She was up and walking around soon as they finished. Â I came out of the bedroom to see her kicking a soccer ball around the lounge yelling D-A-D Dad! Â M-U-M Mum! Â She looked so happy and alive and she was learning. Â Later she wrote her name and did a great job.
In the midst of my angst I got an unexpected text from a friend, a new friend who knows what it is like to trust God during crazy tough times.  She said breathe and know Dad has everything under control.  Wow, what a relief given that I feel everything is spiraling out of control.  D-A-D has it sorted even if I don’t, a loving Dad.  Time to just BE and live and stop battling.
7 Responses to “D-A-D Dad! M-U-M Mum!”
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# 1 Feb at 8:36 pm
Praying for strength and courage for you to let God take over for you. He is able to deliver.You need rest and peace. Aria looks so precious in the video clip.Hoping you get good news soon.
# 1 Feb at 9:15 pm
I have no words to say but God thru His word speaks volumes.Let Him SPEAK thru the business.At present am in prayer for those up north who will experience catagory 5 cyclone on a scale of hurricane Katrina later on tonight.No doubt the hospital may have extra guest when I get in theis arvo as Cairns hospital was totally evacuated as it is near the sea
# 1 Feb at 9:24 pm
I have been reading your blog from the begining and occasionly leave a comment. You have all been though so much, it must be hard to consistantly keep the faith I dont know how you do it. I think its wonderful that Aria no matter what bounces back, smiles and has such fun. My thought s and prayers are with you.
# 2 Feb at 12:02 am
Hey cool clip from Attitude TV. My cousin’s in it 🙂 with her newborn daughter!
Will keep praying for your worries. Stay strong – we love you lots xox
# 2 Feb at 1:12 am
You’re so right, Anita, faith is so hard to have and hold on to when times are tough. The best verse I can think of when things like this go wrong and there just are no answers as to why is “lean not on your own understanding”. But remember that all our prayers are with Aria, you, Amish and Asher and that will carry you through the tough times. Just be, as you said, try to stop worrying, and know that God has everything under control. Many blessings xxx
# 2 Feb at 4:34 am
Anita you are so far away from loved ones and Christine just left and it does not help with the blizzards and such foreign weather for you, yep it is all this sight that has made you feel down. BUT WHEN THOSE INNOCENT BEAUTIFUL EYES AND VOICES CALLS YOUR NAMES, MAYBE JUST MAYBE THAT DAD WANTS YOU TO JUST CALL OUT HIS NAME, DAD! DAD! HELP HELP THANK YOU DAD! DAD I LOVE YOU THANK YOU! After all, he is all knowing and has seen all you have been thru.
So as you hear and see these sights thats bringing you down, think of what our Lord says, “Live by faith not by sight” Hebrews 11 Faith is being sure of unseen blessings amen. We claim all God’s mighty intervention in Aria’s life, and with the cyclone as I pray that it will go to an uninhabited place where there are no living people and animals on it, I thought of Abraham’s intervention prayer for Lot “Lord if there is 50, 40, 30, 20, 10,etc, would you spare the city?” this is the way we have to be with our prayers, persistent and boldly come before the throne of grace and say, Papa could you spare my brother Hamish, sister Anita, Ashe and Aria of all these pains please, please, Papa please and thank you oh so much Papa for listening to our prayer, thank you Papa we love you Papa, thank you Papa thank you Papa thank you Papa…Praise Jesus’ Name thank you Papa amen, amen, amen…
# 2 Feb at 11:45 am
I loved both those videos! Sorry to hear that Aria is still dumping. Prayin that gets better soon! I’m glad to hear that she is having fun learning how to spell & write her name. That’s awesome! Praying that God will continue to give you strength! God Bless!