24 Hours
Aria is home from a 24 hour hospital admission.
Yesterday she spiked a little fever to 38.3. Â Which isn’t a major but she was pretty sleepy and her rash looked so much worse. Â Deciding we really needed this rash eyeballed Aria and I went in. Â Braved the cold -15 degrees here yesterday!
The skin biopsy didn’t show Graft v Host (PHEW!) but they think she has psoriasis and certain drugs can make it worse, one of them she started 4 weeks ago when this rash first started.  So hopefully with some steroids and stopping that drug and replacing it with another she should be better soon.  In the meantime it looks really nasty and we are busy trying to put different creams and potions on (which she hates).
Also tackled the team about her continued dumping. Â Unfortunately Aria is still positive for Norwalk virus and they reckon it might take ‘months’ to resolve. ARGH! Â They also changed her formula to something much more basic and easily digested so that should help too.
Kinda feel like the 24 hours was quite worthwhile although Aria was less than impressed. Â I feel a lot more at peace about this dumping although it is still quite bothersome. Â We will just have to wait it out. Â I feel like God has been gracious to allow answers and some progress, so going to take it and chill a bit.
25 Responses to “24 Hours”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
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# 3 Feb at 6:20 pm
Thanks for the update and glad that there are some answers. Sure wish you could get off of this “roller coaster”, but also joyful that our Father is on the ride with you! Love and prayers to you!
# 3 Feb at 8:37 pm
Just getting some answers is an answer to prayer even though not helping Aria to feel better but maybe that too will get better. I am sure it helps mom and dad.Thinking about you all in this terrible weather. Bad even in Texas.Praying still for all.
# 3 Feb at 9:47 pm
Halleluia praise the Lord for progress and answers, thank you Papa for continued healing of that virus and healing of her rash.
# 3 Feb at 9:58 pm
Tuesday night was one of those non-sleep nights for me. Did you feel my prayers? For a couple hours I talked with the Lord about Aria and her family and about Misty, the daughter of another friend who is facing very serious physical problems. God then blessed me with a few hours of sleep. You have so many friends that love and admire you for your courage and strength and faith. God is good.
# 3 Feb at 10:35 pm
You are so brave to venture out in -15 degrees! But then, one has no other option there. Keeping you all in our prayers. We love you!
# 3 Feb at 11:29 pm
Sorry to hear that Aria wasn’t feeling well yesterday, but happy to hear that you finally got a few answers! Praying the new medicine will help Aria feel much better very soon! God Bless!
# 4 Feb at 1:23 am
So pleased no Graft V Host! That’s wonderful news 🙂 It is nice to get answers, Anita, even if they’re not necessarily the ones we expect or want … at least now you know why the dumping is carrying on and, although frustrating, at least you know it will clear eventually. So patience, trust and faith. God bless you and your wonderful family … always in our prayers 🙂 Blessings xx
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