Stepping forward
Yesterday we had a positive visit with the dermatologist.  She looked at Aria’s skin biopsy and said that while she can’t rule out graft v host she thinks, along with the transplant team, that Aria is having a drug reaction to one of her meds.  We showed her the long list of Aria’s meds.  These transplant kids are complicated and none of the drugs Aria takes are for fun.  BUT thankfully the one she suspected the  most is the one Aria can most afford to go without.  So we have stopped that med and given her another week burst of steroids just to give her a break.
Starting feeds again today and seeing how that goes. Â Aria’s outputs are still up but have settled a bit so it is worth a shot.
Not an hour goes past when we don’t think of Christchurch. Â There was a news story about the quake yesterday on the regional news here. Â Had to blink back tears seeing NZ on TV here and for such a sad reason. Â Lots of prayers needed now and in the future.
9 Responses to “Stepping forward”
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# 24 Feb at 8:15 pm
Glad to hear you might have the up on the skin problem. I have been following Aria’s story for a while now. I am just in awe of you mums who have such sick kids. These kids teach us so much don’t they?
I know what you mean about Christhurch. I am a Christchurch girl myself and it has been h
eart breaking watching the news.Prasie God though all my family are safe. It has taught me that its people who count not bricks and mortar.
I pray that Miss Aria princess warrior that she is contiues to improve and that you get the skin and ouputs licked.
Lyaine.
# 24 Feb at 10:17 pm
So pleased the visit to the dermatologist was a positive one. Hears hoping and praying that the problems will soon be a thing of the past. Yes, our hearts go out to Christchurch too, it is a wake up call for all who need to re-evaluate where their lives are heading spiritually.
# 24 Feb at 10:45 pm
Praise Father for all the answers coming through for Aria we keep vigil for all to come through favourably for her our dear princess amen. Yes, Anita it is heart rendering to see our own country on TV and all the responses from other christians all over the world. Yes, weep with those who weep, rejoice with those who rejoice and mourn with those who mourn…yes, we are one in Him alone amen. God bless you all dear Hamish, Anita, Aria and Ashe and comfort you all with His joy to strengthen you all now and forever amen.
# 25 Feb at 9:28 am
Praying for all of you and for Christchurch… Sending my love.
In His mighty love,
Carolyn O’Cain
# 25 Feb at 1:16 pm
Praying for Aria’s skin problems especially. It has got to be miserable for her. Also for other needs. Remembering also the people in N.Z. who are going thru such tragedy.May they receive prayers and help from the world over.
# 25 Feb at 5:59 pm
So glad to hear that t dermatologist was able to help a little! It is sad to see all the damage, & to hear about how many people have died from this. My heart goes out to the people of Christchurch! God Bless!
# 27 Feb at 1:11 pm
It’s harrowing stuff to watch the TV at the moment – almost good *not* to be here.
I’ve been asked to help move someone out of Lyttleton to down here – bit apprehensive about venturing into the epicentre!
The good thing is that the entire community is getting out and helping – 18,000 students, and yesterday they had all the local farmers bring in their tractors to help clear the roads too.
# 27 Feb at 9:06 pm
I guess this post is for Josh. How nice to see that everyone is helping others in this tragedy. That is the Christian way. I know this also is true for Aria. So many friends have been there for her and who could not admire all the McDonalds for the witness they have been for us who do not even know Aria but have come to love her.Prayers for all.
# 18 Dec at 5:18 am
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