Better again!
Aria woke up pretty grumpy this morning. Â She said ‘nurses wake me up too much’ Â Actually she slept pretty well and I think that the nurse did a good job of stay out of the room but I guess Aria didn’t think so! Â Still just before Asher and Daddy got in at 10 she started to perk up and smile again and next thing you know she is standing painting at the easel Child Life brought in.
Aria went down for a temporary line today. Â Not a permanent line. Â They want to wait for 48 hours of clear cultures before risking the yeast sticking to a new line. Â Thankfully the peripheral in her hand lasted almost three days! Â Wow! Â They cultured the tip of her old line and it was a petri dish of bacteria 🙁 so glad it is gone.
Rounds this morning confirmed that all the biopsies were negative for everything, not even inconclusive. Â That’s good. Â I guess tonight I don’t feel as elated as I did yesterday. Â The reality is Aria is still dumping and while she doesn’t have anything serious we didn’t feeling that the team are 100% sure this is still Norwalk. Â To be fair rounds have be rushed and patchy this week and we have only seen the surgeon for the first time today.
Still my gut told me yesterday Aria wasn’t suffering from rejection and GVH. Â And my gut tells me this intestine is completely fine! Â Why? Â Here is my thought process:
God rescued Aria from liver disease not once but twice!
He provided funding and a gift of organs not once but twice!
Between transplant her little body was gripped with a multi drug resistant super bug which made a come back at the end of last year.  Despite many bacteria growing this admission all of them were sensitive to lots of drugs and the super bug  hasn’t been seen since we started her inhaled antibiotic treatment.
Aria spent months on a ventilator unable to breath by herself, months at home on oxygen and diagnosed with chronic lung disease.  Despite a setback end of last year, she now breathes room air day and night!  We even sent back all her oxygen stuff last week!
So you see there seems to be a clear pattern of huge mountains for Aria and God overcoming them, so it gives me faith that He plans to continue to be gracious to her and us. Â Could I be wrong? Â Maybe. Â Maybe one day there might be a mountain that God chooses for Aria not to climb. Â Would he still be completely Good and worthy of our praise? Â Yes!
10 Responses to “Better again!”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 9 Mar at 9:58 pm
I think you are right to feel so hopeful and to know in your heart that this is true! Always thinking of you xxx
# 9 Mar at 10:01 pm
GOD IS GOOD ALL THE TIME
ALL THE TIME GOD IS GOOD
# 9 Mar at 10:06 pm
You are a beautiful testimony to our loving God. Aria and your entire family are always in our prayers.
# 9 Mar at 10:46 pm
Can’t believe what an upside down and around about life you are all living. God MUST be guiding you through it all and giving you all the strength you need or else you wouldn’t still be doing all you are doing. My prayers and thoughts are with Aria and you all but I just don’t know how you do it!
# 10 Mar at 3:55 am
Your an inspiration to me, with your faith, not only do you talk the talk but you walk the walk. Aria is blessed to have such a faithfilled mummy and daddy, In His Time He Makes All Things Beautiful!!!
# 10 Mar at 8:37 am
Halleluia praise the Lord dear Anita and Aria, Hamish and Ashe. The family of God we all belong to feels the same Anita, we feel your heart and pray in agreement with you brothers and sisters.
In Christ our Redeemer, lots of love to you Aria and MacDonald family. Keep up your joy, for the joy of the Lord is your strength. Doubt will never be on our vocabulary amen, amen, amen…
# 10 Mar at 12:52 pm
Bless you, God and you together make a great team …… if not the greatest.
Thanks for your news every day.
With love ……. God bless you
Eve
# 10 Mar at 4:49 pm
Such a witness to the love of God and the faith you all show. Aria is such a precious gift and Asher also. Still praying for healing and rest for all.
# 11 Mar at 9:08 pm
Your updates a just so wonderful and always move me and each time I read them I always say a prayer for you all. Todays update was just so true. And I know exactly where you are coming from and he does work always for the best but sometimes it is hard for us to see or understand but you have such great understanding. Keep up your faith and strength. love to you all Jan
# 27 Apr at 7:45 pm
I am now not positive the place you are getting your info, however great topic. I must spend a while studying much more or understanding more. Thanks for magnificent info I was searching for this info for my mission.