Home!
So Aria is home again. Â A week long admission. Â Feels good to be home.
She is on quite the regiment of medications! Â Of various methods. Â As I write this she is having her ‘eating medicine’ Â Her enzymes. Â We mix them with applesauce and spoon feed them to her. Â She has to eat them because they are to big to go down her NG tube. Â She doesn’t how to eat and we are really hoping this will teach her. Â Currently she pushes food out of her mouth, kinda like when you have a hair in your mouth and you are trying to get it out. Â This morning she has done better, so that is encouraging. Â But it takes a lot of coaching and encouragement to eat a teaspoon of mush. Â And we have to do it twice a day.
Frustratingly we had to order back all Aria’s o2 supplies! Â Argh! Â She has been needing a little bit at night this week but was getting better but we had to be safe and make her we had o2 at home if we needed it. Â When I was returning the supplies last week I wanted to return the big compressor and keep the little o2 tanks, just in case for a septic episode. Â But insurance companies rules are that once you are off O2 you have to return ALL your supplies. Â Try explaining that we don’t have insurance and our govt is paying and we don’t have to abide by these silly rules! Â So against my better judgement and gut feeling all the O2 supplies marched out the door. Â Aria has gotten better over the week and last night didn’t destat at all. So there is a pile of O2 consumables and a compressor and tank sitting untouched and probably/hopefully will remain that way.
As for the dumping, it is still the same 🙁
Anyway thanks for the prayers, please keep praying for this bowel to hurry up and start working again.
10 Responses to “Home!”
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- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 13 Mar at 11:55 am
So good to hear news again. Happy you are back home. May things continue on the mend.Praying for that bowel and rest for all.
# 13 Mar at 1:44 pm
Great that you are back home. Will keep praying for the bowel to start working again.
In Christ
Tony
# 13 Mar at 3:21 pm
Yes PLEASE Lord, may Aria’s new bowel start working. Please, please, please. AMEN. Sending our love to you all. XXX
# 13 Mar at 4:16 pm
Thank you Papa for fixing Aria’s bowel and making it work well and kept safe from all bad germs so she will be well and able to come home NZ amen.
# 13 Mar at 4:44 pm
I love it when your posts are titled “home!” So good to hear. You always have a place to donate your unused O2 supplies!! (: we will even pick them up haha.
Love to you all.
# 13 Mar at 9:36 pm
Glad to hear that Aria is home again. I pray that God will heal Aria, make the Norwalk virus go away for good, that her dumping improves, and that her bowel will work correctly again! God Bless!
# 13 Mar at 11:10 pm
I feel your pain. Hugs all round. XXX
# 14 Mar at 12:42 am
How well does Aria have to be before returning to New Zealand? Go well and take good care of yourselves as well…..
# 20 Jun at 6:04 pm
Sorry to hear about Aria you two. Hold stong.
# 21 Jun at 9:07 am
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