No updates on the blog…
…….normally means not much sleep happening in this house.
Aria is battling a bit of a cold right now. Â She has been having low grade temps for a couple of days and has quite the cough. Â We have rung the team and took her to clinic and we all agreed we could manage her at home.
The trouble with Aria is this central line.  A temp in a kid with a central line puts everyone on high alert.  An immune suppressed kid with a central line double high alert!  Thankfully though Aria has been a pretty happy chap, walking around, laughing and chatting.  Kids with central line infections don’t do that!
Our sleep on Thursday night was pretty bad, I think I got about 2 hours. Â Last night was better so I think we are on the downhill side of this. Â That is good, look like we have been able to avoid a hospital admission and manage her at home. Â We have build up quite a collection of tools in our tool box and have been using them all but thankfully we didn’t have to bust out the O2 (which is still sitting untouched!)
More conversations at clinic on thurs about Aria’s continued dumping. Â We stopped her Imodium for 48 hours while her gut recovered from the General. Â Unfortunately the dumping came back but it is back under control now. Â So we have it control and we are advancing her feeds- up to 70! Â Goal 90! Â They were saying about how fabulous Aria’s transplanted gut was ‘You could give it any formula and it would be great!’ Â The surgeon was convinced without doubt that it would in time return to it’s former glory, we just have to wait it out. Â So it we just have to wait and trust- it is hard though, three months on, I just want it to be over!
Psalm 27:14 (New International Version, ©2011)
14 Wait for the LORD;
be strong and take heart
and wait for the LORD.
Please keep Emerson in your prayers.
13 Responses to “No updates on the blog…”
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# 26 Mar at 1:06 pm
Praying for the Lord’s strength over this time of challenge and continued improvement for Aria at Redeemer today.
In Christ
Tony
# 26 Mar at 7:36 pm
I don’t know if it is allowed for Aria but I have just found out about the wonders of soda bicarb and colds/flu etc.!Check it out on Google. If not for her then for those around her. It is all quite fascinating!
# 26 Mar at 8:15 pm
Have missed the posts on the blog but trust all is going ok. Still praying daily and knowing God and his angels are looking after you all.
# 26 Mar at 8:52 pm
HUGS and best wishes, so pleased to hear things are generally good, thinking of you as always xx
# 26 Mar at 9:19 pm
Thanks for the update Hamish and Anita yes, wait for the Lord. He is allwise and allpowerful and all faithful amen. Today I thought of all the trials and testings its been for you all and especially for Princess Aria’s transplanted organs. Our Papa is so wise; with any new part we need to test it and so far even with virus, it has withstand all tests so that her immunity may be totally healed and strengthened. So what is this princess going to be? All that God wants her to be. Jeremiah 29:11 God’s plans amen. Pray that Emerson knows God’s presence and healing today and always amen.
# 26 Mar at 9:38 pm
Praying for Aria and you all at this time. Also remembering Emerson in our prayers.
# 26 Mar at 10:05 pm
We are hugely excited at the massive progress Aria has made in such a short time. Of course, it must feel like a long time at your end. May God comfort you and strengthen you throughout this long long wait for everything to be normal with Aria’s new gut and bowel. From here in NZ, we have such a sense of God’s power in what He has accomplished for Aria, it is so incredibly humbling and inspiring. Thank you so much for all you have shared with us and others around the world through these blogs, and through television and in print. If we were in your place, we would probably not care much about what a wonderful testament to God’s love and power this has all been, we would just want our girl well! The fact that you must so often feel this way, but still choose to thank God and to share your journey, is precious indeed. May GOD BLESS YOU ABUNDANTLY. And we MEAN that – it’s not a throwaway line at all. You guys are just awesome. And so faithful. THANK YOU.
# 26 Mar at 10:39 pm
Sorry to hear that Aria has a cold, but glad to hear that she is on the mend. Yikes, about the 2 hrs. of sleep. Glad to hear that sleep time is getting better too. Hopefully, you will get lots of sleep tonight! Praise the Lord, you didn’t have to go to the hospital this time! God Bless!
# 27 Mar at 2:15 am
Praying as always for Aria’s health and for rest for her parents.Also praying for Emerson and her family. Blessings,
udy.
# 28 Mar at 4:19 am
Going well there,thought it had been a while since and update, but as they say no news is good news!! Take good care of yourselves won’t you.
# 28 Mar at 3:46 pm
Hiya from NZ – thinking of you all. Sending love and prayers x
# 30 Mar at 4:17 pm
Praying things are going well
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