Not good news
So a lot has been going on and we have been waiting for results this afternoon before we updated.
Aria has EBV/Mono/Kissing Disease/Glandular Fever.  It has been ‘cooking’ in her blood work for awhile, at low numbers.  Now it has reached 9 million.  Pretty high.
EBV causes PTLD, post transplant lymphoproliferative disorder or post transplant cancer. Â She has a CT scan today and it showed enlarged lymph nodes thru out her body. Â This wasn’t great news and means there is an 80% chance she has PTLD.
On Monday she will have a lumper puncture, bone marrow biopsy and lymph node biopsy in the OR under a general. Â This will tell us if it is or isn’t cancer.
We are hoping and praying we have caught the EBV early and the cells haven’t switched over to PTLD. Â We deeply covet your prayers for this.
If it is PTLD Aria will start Chemo Lite on Wednesday. Â This is less aggressive that regular chemo and of course I asked if she would lose her hair and the answer was ‘probably not’
Right now as things stand Aria pretty much no ability to fight infection. Â Her white blood cells and platelets and other markers are very low. Â Today she got some blood and platelets. Â She is currently at very high risk for infection or a spontaneous internal bleed.
So we are begging God for his protective hand in her life preventing her from infection and that there would be NO PTLD! Â It is possible, anything is possible. Â We are claiming victory!
46 Responses to “Not good news”
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# 1 Apr at 3:47 pm
Yuck! My heart breaks with this news. I will pray, pray, pray for Aria and all of you. God is still in the healing “business”. Give each other hugs from me. Always praying…
In His mighty love,
Carolyn O’Cain
# 1 Apr at 3:51 pm
Can’t believe it! and YES I will pray she will NOT develop PTLD! PLEASE God!! So sorry to hear xx
# 1 Apr at 4:22 pm
🙁 lots of love and positive thoughts for Aria.
# 1 Apr at 4:26 pm
Sending all my love, strength and prayers to the MacDonald family. Thinking of you all during this difficult time and praying for the best outcome xxx
# 1 Apr at 4:26 pm
Oh you are right, it is not good news at all. Keeping you all very firmly in my thoughts as you wait over the weekend for some more action and some answers. Loads of love to you all xxx
# 1 Apr at 4:30 pm
Oh, I feel sick. You guys are obviously in my prayers, hoping for the best possible outcome.
Ali xoxo
# 1 Apr at 4:32 pm
Praying hard for better news. Keep the faith as God is still in charge and many pleas are going up on your behalf.He is still the GREAT PHYSICAN.
# 1 Apr at 5:13 pm
no words describe… praying to Our Lord God and Saviour for Aria and your family
# 1 Apr at 6:12 pm
Oh I can’t even begin to imagine how you guys are feeling right now!! Praying fervently and yes, God is a God of miracles and all things are possible with Him! Xoxo
# 1 Apr at 6:16 pm
praying for mercy and grace , healing and strength. Psalm 103: 1-5
Love Helma
# 1 Apr at 6:20 pm
oh no! horrible to hear this – hoping she is okay!
# 1 Apr at 6:23 pm
Thinking of you all, and sending positive vibes to you from New Zealand xx.
# 1 Apr at 6:32 pm
Oh my word! I will be praying with all that is in me, that she does not have PTLD!!! I can’t even begin to imagine what you’re feeling right now, but I’m sure part of it is tremendous stress. I know God will be there for you, no matter what, but I do pray it isn’t PTLD! May God be with you, and Bless you!
# 1 Apr at 6:43 pm
Will pass along to Carol in Glen Ellyn; our prayers will continue for a miraculous outcome. Strength and courage for the whole family to continue this fight, and wisdom showered on all the decision making to come.
# 1 Apr at 6:46 pm
dear Aria another hurdle for you to jump.Remember god is jumping that hurdle with you sweetheart.I have a friend in Aussie awaiting similar tests,they have sent all of her results to America for 2nd opinions,so I believe Aria is in the right place.prayers sent your way 🙂
# 1 Apr at 6:57 pm
If I feel nauseous I can only imagine how Sick you and Hamish must feel! I pray the tests bring good
News for you all–I pray for your strength and hers and for all the medical
Staff working so hard to bring you all safely though this.
# 1 Apr at 7:03 pm
Heal her Lord!!! I’m crying.
# 1 Apr at 7:48 pm
Oh no!!!!!!! That is not good news. all the very very best. So pleased God knews what is going on. Will be praying for a wonderful otcome and strength for you all. Thats a very hard road you are still on. Take heaps of care
# 1 Apr at 7:59 pm
Oh No you have had such a long road to travel. I hope the results turn out to be the more positive one. God bless, my thoughts and prayers are with you all,
# 1 Apr at 8:03 pm
Thoughts, blessings and healing prayers heading to you Aria and your loving family.
# 1 Apr at 8:06 pm
I couldn’t think of worse news for you all and of course you are all in my prayers constantly. After so much it hardly seems right or just that this should happen. Be strong (as you most certainly all are) and lots of warm fuzzies to the four of you.
# 1 Apr at 8:08 pm
Sending loads of healig prayers to Miss Aria and hope that god heals this precious wee girl.
All my love to you all xxx
# 1 Apr at 8:13 pm
Hey Anita/Hamish,
So sorry to hear about little Aria. She has such a little sweetie. You guys have all been thru so much, Aria is such a strong, brave little girl. You guys may be far away from the family at the moment, but you’re always in our thoughts and prayers.
Much love,
You cuzzies,
Ange & Shaun xxoo
# 1 Apr at 8:16 pm
Wow we will pray for you all. Praying that God will heal Aria again as He has done so many times before and for your strength and faith at this difficult time. Love to you all.
# 1 Apr at 8:23 pm
i am praying hard – this is not allowed to be cancer – much love and healing prayers from me here in NZ
# 1 Apr at 8:37 pm
Go MacDonalds! Your super positive attitude just shines through. EBV was always scary for us too, just keep saying EBV and only EBV! We will be keeping only positive thoughts for you all and especially Aria. You ALWAYS land on your feet, just remember that. Having said that, I am hugging you in my thoughts, I know that you are probably so tired that just getting through the day is hard without any added challenges. You WILL get through this hurdle too xxx hugs xxx
# 1 Apr at 9:11 pm
We are standing with you all believing God for a good outcome to this news. You are all really close to our hearts.
Psalm 103:3
Praise the LORD, O my soul, and forget not all his benefits–who forgives all your sins and heals all your diseases.
# 1 Apr at 9:38 pm
love you guys. praying. praying. praying.
# 1 Apr at 10:02 pm
Bad news doesn’t take God by surprise. Just hang on to Him. He cares and is in this with you.
# 1 Apr at 10:04 pm
Oh Guys 🙁
Your are all in my thoughts.
# 1 Apr at 10:05 pm
Hope little Aria will be wihtou PTLD and keeps up her tremendous strength! Keeping my fingers crossed there will be no complications and she’ll recover with the blood & platelets…Keeping you all in my thoughts!
# 1 Apr at 10:23 pm
Praying for you! Amen to the fact that in Christ we have the victory and that all things are possible. Praying for peace while you await news and for fast recovery! will definitely be a special item of prayer at church tomorrow. xx
# 1 Apr at 10:24 pm
We are praying here, too – for Aria, for the hospital staff and especially for you, Anita and Hamish – that you will know God’s peace that passes all understanding at this time.
# 1 Apr at 10:25 pm
whatever God’s plan is for Aria, we know it is the right one, even though it is so hard for you to watch all her struggles and to handle all the set backs-we are all interceding in prayer and giving it to Jesus to deliver at the throne of God’s grace and mercy-let the joy of our Lord be your strength-Dear Lord please heal this little princess – love, Jeannie
# 1 Apr at 10:40 pm
This is worrying news but Aria has overcome many many hurdles in the past and hopefully will continue to do so. My thoughts are with you as always.
# 1 Apr at 10:46 pm
Aria is in my thoughts and prayers.
# 1 Apr at 11:14 pm
I’ll be praying for Aria and all of you. God is loving and good no matter what the next tests show. Sending lots of love your way.
# 1 Apr at 11:19 pm
Amen to prayers above, victory in Christ Jesus always amen. I love you God loves you and everyone loves you. Pray for Lord Jesus to take over all Aria’s treatments and healing In His mighty Name amen. I can see all the bowls of incense before the Lord’s throne, the prayers of the saints and I know the answer, praise God amen. John 14:14 Ask me anything in my Name and I will do it, Jesus says. Halleluia! Glory to God for all His love for Aria!!!
# 2 Apr at 1:24 am
Oh Anita and Hamish you, Aria and Asher are so in my thoughts and prayers. Miss Aria has triumphed so many times on this journey I pray she steps up and over this hurdle like all the others she has achieved. Kia kaha xxxx
# 2 Apr at 1:44 am
You are all in my thoughts and prayers. Love to all of you. Stay strong.
# 2 Apr at 2:13 am
Gutted. Just gutted. That’s all I can say, except that I too am sending positive thoughts your way, hoping fervently that the outcome will not be what you fear; that if it isn’t good news, you will indeed have caught it early, and that in any case, the wonderful medics that have seen her through so much thus far, will bring to bear all their considerable knowledge and skill to heal her. All the best.
# 2 Apr at 3:54 am
Praying for God’s healing hand over Aria. What a scary time for you.
# 2 Apr at 10:00 am
So sorry to hear this update, guys. We are praying!
Randy for all
# 3 Apr at 2:13 pm
Praying for a good, positive outcome and standing in agreement with your prayers, Anita. God bless x
# 3 Apr at 2:50 pm
You are all in our thoughts and prayers! xxxxxxxx
# 26 Aug at 5:29 pm
in brawl… http://su.pr/9yrG5I?=TheC