Good news/Bad news
The good news
Oops forgot to post last night- Aria’s EBV count is 15,000! Â Down from 570,000 last week. Â Awesome
Aria is completely off O2! Â Breathing room air.
Turns out she had rhinovirus, the common cold, last week. Â This could of been a complete disaster and put her life in serious danger given her zero bone marrow function (no I am not being dramatic). Â Given there is no treatment for a virus and she has no ability to fight it, the fact she is doing so well is a miracle. Â Yup- I am going to use the M word- cause it is!
I am completely over the no hair thing and we are having a lot of fun with that hats.  Little crochet beanies and swapping out fun accessories.  Today it was a brown beanie with a big pink flower, this evening a black beanie with a bright pink fluffy clip.  Thanks Lindsey for the hat gifties!  Will post photos soon.
The bad news
Yesterday she cultured ‘her Pseudomonas’ in her urine.  Her nasty ABX resistant one.  Quite disappointed as it has never ever been in her urine before.  BUT it was a really low count 6,000 and it wasn’t there in the 2nd culture and it is likely not making her sick but we are going to treat it away.
Aria is still having fevers. Â Yesterday as high at 40.1.
Her ANC was 300 on Sunday, then zero for the past few days and 100 today.
Until the fevers go and the ANC trends up she has to stay in hospital. Â It could be weeks. Â Please pray it isn’t!
14 Responses to “Good news/Bad news”
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# 27 Apr at 8:37 pm
High temps are no fun. 🙁 We are praying you get home soon. until then enjoy playing with those hats!
# 27 Apr at 8:50 pm
so cool about the hats- what a lot of fun you could have with that- a positive spin on a not so positive situation. Hoping and praying that the other issues come right soon.
# 27 Apr at 8:53 pm
Aria certainly has her good spirit having some fun with her hats.At least it takes her mind of other things. Being a family apart has to be hard but as long as God has his hand in all of this all is well.
He makes no mistakes and knows his plan for you all.
Praying for good days for all.
# 27 Apr at 9:05 pm
defiantly praying for you guys!!! Aria is an amazing kid with lots of people backing her in prayers!! Thinking of you guys!
# 27 Apr at 9:27 pm
Hopefully Aria will feel better soon, and the pseudos will go away! Glad you are having fun, in what is a stressful time! That always helps. Praying you will have more fun days ahead, and no bad days! God Bless!
# 27 Apr at 9:54 pm
Hey, Aria, if you think hats are fun, wait until you can try on one of those coloured wigs! Lots of love to the most fashionable girl in the whole hospital. xxx
# 27 Apr at 11:01 pm
Luv what Nikki says. I have boxes of wigs in the garage used for Billy ‘do’s. Thinking of you. XXX’s from me – over the sea. Special HUG for Aria. Rock On Girl.
# 27 Apr at 11:21 pm
Praise the Lord for miracles – we are praying for lots more yet and for Aria to be home and well!
In Christ
Tony
# 28 Apr at 12:17 am
thanks for the update keep strong love to you all
# 28 Apr at 3:13 am
I will pray that it will not be weeks. You are such an amazing family. Take care.
# 28 Apr at 5:56 am
Dearest Champions. You are running a marathon of faith only this amazing marathon is up in the mountains literally. Scaling the peaks takes you to your limit then your coach Jesus who is running with you gives you an energiser a miracle. sometimes the terrain gets easier but you are still running in the mountains. So take heart dear ones we are standing on the sideline cheering and waving you on blessed and encouraged in our race by your honesty, courage and determination. KIA KAHA
# 28 Apr at 6:02 am
We had a miracle today Matthews Heart (previously damaged by the heavy regime of chemo he needed to get into remission)improved and the Cardio and Oncology consultants thought the machines must have not been working last time except could not explain why the symptoms consistant with that level of damage had disappeared. We told them it was prayer but they were still scratching their heads. They’ll get it one day =)Our God is an awesome God.
# 28 Apr at 7:11 am
I love you Aria, your MOm and Dad and your dear brother. It is nice to hear of your good progress Aria and all the nice hats and trimmings; bet youre going to be a hat fanatic lady haha!
Cant wait to see all your fashion changes on post. Thank you also Jane for sharing your lives and pray that Matthew continue with good progress thank you for encouragement for Aria and family. We give thanks for all the miracles God is sharing around his dear children whom we pray for. Praise Father for all his love and faithful healing of Aria, Matthew and others especially for champion mothers and fathers and family supporters. Yep all who are carers are champions to the one being cared for.
God bless all our champion doctors and nurses who willingly give of their wisdom and time to see these beautiful children of God being healed and living to the glory of His wonderful Name amen.
# 28 Apr at 5:32 pm
Did you ever get hold of “The Shack” to read? It will help you carry on regardless and perhaps understand things a bit better.
Lots and lots of love to all 4