Hopefullness
Aria’s bone marrow is showing signs of life! Â This is great. Â Her ANC has been slowing creeping up. Â Today is is 629! Â Yay. Â Over the magic 500 mark. Â Still a long way off from a normal 2,500 but at least it is on the improve.
Her biopsy yesterday came back completely normal. Â This is good news. Â Unfortunately she is still dumping a huge amount and there are no good reasons why. Â It is tough, we just have to hope and pray it recovers.
Her temps have been pretty good too. Â The highest they have been have been 38.5. Â Unfortunately she has been having headaches at night which made for a bad night for Hamish yesterday. Â I am hoping for a better one tonight!
Today we went to the Cinco de Mayo party that the hospital put on.  A Mexican fiesta!  We ate Tacos and played games.  Aria surprised us by walking around a bit.  Then surprised me again by walking from her room to the nurses station and back twice later in the day!  She hasn’t walked in weeks so it is nice to see her on her feet.
So until her outputs are down to a more manageable level we are still stuck in hospital. Â Hopefully that happens soon.
The hair or lack of is a sensitive topic.  Asher is fascinated by the fact she has no hair, he thinks it is really funny and wants to touch her head.  Aria however seems sensitive about it and doesn’t like to talk about it.  I hope it starts to grow back soon, up until now her differentness has never bothered her.  It is hard because without hair she is so obviously different and I think she understands that.  Sigh.
17 Responses to “Hopefullness”
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# 4 May at 9:08 pm
So relieved to see your update. Glad things are looking better and that tests were good. Will just keep praying for you all.Nice Aria felt like walking about. Praying for rest tonight.
# 4 May at 10:05 pm
Tell Aria I think she looks ACE in hats! I love hats!!!
# 5 May at 2:22 am
Hey Aria, you are beautiful – hair or no hair! Praying you get home soon!
# 5 May at 2:29 am
Some great encouragement. May all the trends continue. We keep praying
# 5 May at 4:15 am
Praise the Lord for continued progress. We will be praying for a continuation of that and then home!
In Christ
Tony
# 5 May at 6:37 am
Thanks for the post! And the good news! We will pray about the “rest of the news”. Aria, you are beautiful with or without hair. And we are so proud of you!! Love to you all!
# 5 May at 10:56 am
Peace and grace to you all. Great news about Aria walking! Still praying always for each of you as well as the friends, doctors, etc. who care for your entire family. Sending my love…
In His mighty love…
# 5 May at 11:09 am
Loving you and praying for you all.
# 5 May at 11:23 am
That is great news about her bone marrow! Yeah, hopefully hervoutputs will improve, for everyone’s sake! Aria, is still beautiful (hair or no hair)! Praying that it will grow back for her soon! God Bless!
# 5 May at 2:09 pm
But she is still our beautiful Aria. And most people that lose their hair seem to get a back even better than it was. What an amazing journey that you all are on, but what incredible people you must be because we know that God doesn’t give us anything we can’t handle but sometimes we have to wonder when the ride is so bumpy. Love to you all
Jan
# 5 May at 2:43 pm
Great news things are improving. Aria is still beautiful with or without hair but I guess that is hard to tell that to her! Praying you will soon be out of hospital and things will keep progressing until the miracle we are all praying for is complete. xx
# 5 May at 4:15 pm
Praying you guys are able to get more sleep and sweet Arias headaches subside… Your sweet girl, what a champion she is!! Continuing to pray that her outputs reduce some and those counts continue to rise!
# 5 May at 5:49 pm
Aria’s walking is so like this whole journey. One step at a time, and in the right time. But please God may all the worry be over soon, and may Aria be able to go home. Amen.
# 5 May at 8:12 pm
Lovely to hear things are encouraging.Go Aria with the walking.Do hope the package gets there in one piece and not all messed up
# 5 May at 8:40 pm
You are beautiful Aria! Love to you guys, glad to head things are on the up and up. The Elsaessers
# 7 May at 3:52 pm
Happy NZ Mother’s Day Anita! You rock.
# 9 May at 2:55 am
Yes, happy and blessed Mother’s Day dear Anita.Aria is very beautiful, a mighty gift from the Lord. We’re praying for total recovery and a fresh portion of strength for you all. We want you all back home real soon. Thank you Jesus!