Finally…some good news
Today was news day. Â We had the results of the bone marrow and skin biopsy and the CT scan of her lungs.
Good news on the lung front, the suspected fungus nodules are GONE! Â Just gone. Â And there was nothing else of note except a slight regress in her chronic lung disease. Â But we had stopped a bunch of treatments so those are going to be restarted which will take care of that.
Things were bad when we thought it was fungus in her lungs, it would of meant a long treatment and no hope of chemo being restarted. Â It is a big relief to have this off the table.
Unfortunately though her bone marrow showed 10% function and no clear diagnosis, inconclusive. Â But I asked if the 10% was ‘at least something right?’ and they said ‘yeah sure, it is’
Also Aria’s liver numbers continue to climb which is not good. Â Her eyes are yellow from the high bili and now her other numbers are climbing. Â Still she has been having blood transfusions etc and was on a treatment for the fungus which could of been causing her numbers to climb (but not the bili). Â There is a good working theory as to why her liver could be mad. Â Now we can stop the fungus treatment everyone is hoping things get better. Â A liver biopsy might be scheduled later in the week but having an ultrasound today to check blood flow and running a bunch of other tests.
So today we celebrate the good news. Â And personally I am a fan of no news. Â I would have rather had an inconclusive bone marrow test than a bad one. Â I very much just like to put my hands over my ears and ride it out. Â Hamish of course wants a diagnosis, like any normal parent would! Â I don’t know, this journey is so tough it is hard to know what to hope for.
In other news Aria is doing really well. Â She is learning to write and read which is super exciting, every day she gets better. Â She is a busy bee most of the day. Â She is back on her feet too. Â Her eyelashes are sprouting some solid growth and her eyebrows too. Â Head is still bald as, but it will come.
Asher was up till 9pm last night. Â He was crying so I went in to check on him. Â ‘I need my sister’ he told me with his little chin quivering. Â ‘Aria leave hos-e-al’ (hospital) Poor boy, honestly my heart just hurt for him. Â I asked him if he wanted to talk to God about his sadness and to ask God to heal Aria like He does in his bible. Â He said ‘yes!’ So we prayed and by the end Asher was feeling better and went straight to sleep.
God is doing great things. Â He has done great things. Â There is more to come!
13 Responses to “Finally…some good news”
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# 24 May at 4:55 pm
My heart foes out to Asher poor wee fellow, but honestly you do so well with them and are wonderful in the way you handle things God is
giving you more and more strength. Glad that he was able to sleep God is good.
Also the news on Aria Bless her Heart.
# 24 May at 5:06 pm
What better Person to talk to about hurts but God. You are building a solid foundation, giving your children a real Christian heritage. (Remember the lost dolly? and how Aria prayed?) So many parents try to be God and have all the answers, trying to make things OK when they aren’t. May God encourage you today!
Lots of love
# 24 May at 5:08 pm
ohhh that is so personal, Ashe wanting her sister to leave hospital. God answers your prayers Ashe cos your angel faces the Father daily, praise the Lord for wonderful answers to prayers!!! Hugs to you all Anita, Hamish, Ashe and Princess Aria. Ill let you into a secret, I sleep with Aria’s photo on a pillow beside me and ask Papa to make her grow up to be a young woman princess that will make her Daddy proud, so Ashe keep on praying, God answers prayers….
# 24 May at 5:18 pm
I’d be a Hamish I’m afraid! As a family you live with such a lot and yet you still cope with whatever is sent your way. AND you look for the positives all the time Anita – all credit to you. God’s love and hands will guide you all.
# 24 May at 7:21 pm
Anita, I just want to tell you how awesome you are! I know you may not feel it. But from back home reading your posts we can see it.Your and Hamish’ faith and testimony is a blessing to all those who read your posts and give them the faith to believe God for miracles in their lives. Love you heaps. A big bear hug from me to you.
# 24 May at 7:49 pm
Oh Anita, I had to laugh – we are alike and our Hamish’s are alike. I used to have to put Ham on speaker phone when the docs did rounds as he liked all the details and diagnoses and used to grill me if he wasn’t there! Meanwhile I would like to just look at the progress and not know too much if it wasn’t great stuff! Lovely to hear the good news from you!
# 24 May at 7:58 pm
Thank you so much for sharing your journey. You ARE amazing. Today we rejoice with you over the good news. We thank God for the little and count on multiplying them. Asher’s prayers are delightful. Jesus loves children and He hears.
Bless you heaps!
# 24 May at 9:03 pm
Praying tonight for Aria and the family. May God surround you with his love and give you peace. Keep the faith and it will carry you. That is his promise.
# 24 May at 9:35 pm
Glad to hear that you finally had at least some good news! That is great to hear! I will be praying that God will give Aria’s doctors wisdom, skill on how to help & treat Aria for her other issues. Aww…it is so nice, yet sad that Asher misses his sister, & completely understandable. Praying God will give your family peace through everything! God Bless!
# 24 May at 10:57 pm
Wonderful to get some good news Anita. You are one amazing family and so wise the way you guide and bring up your children. Even though Aria has been apart from Asher so many times the bond between them is SO strong! Thank you for letting us be a part of those standing shoulder to shoulder praying for your family. It truly is a privilege. xx
Ps 103:3………..Who forgives all your iniquities, Who heals all your diseases…
# 25 May at 12:02 am
Asher – what a cutey!!
# 25 May at 10:49 am
Great news on the lung front. Praying for continued clarity and progress in the other areas. Small steps forward are good steps!
In Christ
Tony
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