Tools
Two new tools are on the table today.  Dialysis and the Oscillator.
These were two things we were really hoping to avoid in Aria’s care and mark a decline in her health.
Dialysis is starting today to help pull fluid off her little body and allow her lungs to expand and work better. Â It will only be successful if her blood pressures stay stable.
Her vent is on the highest settings and her gases aren’t good. Â So far she is managing ok but it is an hour by hour thing. Â We really really really don’t want her on the oscillator. Â Like really really. Â It is horrible. Â So we pray she can avoid it.
The team believe these are reasonable measures and we are still working and hopeful that her life can be saved. Â God can bless these tools even though we don’t want to use them.
We aren’t done fighting! Â Aria isn’t done fighting although the battle is getting harder for her.
James 5:13-15
13 Are any of you suffering hardships? You should pray. Are any of you happy? You should sing praises. 14 Are any of you sick? You should call for the elders of the church to come and pray over you, anointing you with oil in the name of the Lord. 15 Such a prayer offered in faith will heal the sick, and the Lord will make you well. And if you have committed any sins, you will be forgiven
The pastor and an elder from GRC in Omaha can to pray over and anoint Aria yesterday. Â Such an amazing and blessed time of prayer as we begged God for her life. Â We were so deeply grateful they came to pray and lend us their hearts and voices to seek our God.
Please keep praying for us! Â Please storm the heavens and seek God’s intercession in Aria’s life. Â He can totally heal her!
36 Responses to “Tools”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 19 Jun at 4:02 pm
Praying for you all at Redeemer church yesterday.
May God grant you all strength and comfort at this challenging time.
In Christ
Tony
# 19 Jun at 5:11 pm
I have believed and seen these verses come to pass in my son’s life and I pray that this is also God’s will for Aria.Will continue to plea in her behalf.May he give you all comfort and peace tonight.
# 19 Jun at 5:39 pm
“Fighting”,praying,with and for you, love from the Sonnevelds
# 19 Jun at 5:48 pm
Aria often comes to my mind, and I pray for her while I drive in the car. I know I have never met you, but I will continue to pray for your brave girl xo
# 19 Jun at 5:53 pm
I am thinking of you and praying. Take care.
# 19 Jun at 6:09 pm
A mighty AMEN Anita to all your words a the end of your post – God is able to completely heal her – it’s all in the realm of possible, achievable, and totally desirable!! We’re praying!
# 19 Jun at 6:17 pm
Thinking of and praying for you all. God is indeed mighty. You are so brave writing these words, Anita.
# 19 Jun at 6:18 pm
🙁 as a mother of a little boy with HD my heart aches and breaks for you and your family! We hold Aria and each of you very close to our hearts and will continue to pray!
# 19 Jun at 6:20 pm
yes we want and pray for a TOTAL healing for Aria, not a just a healing in this one thing or that other one thing-praise God for sending the pastor and elder to annoint Aria! May the Lord continue to hold you all in the palm of his healing hands
God bless-love, Jeannie
# 19 Jun at 6:27 pm
MacDonald’s, we are praying too!!
# 19 Jun at 6:28 pm
Jesus, please keep Aria’s blood pressure stable and allow the dialysis to work. All of us pray that she won’t need the oscillator. Please surround this whole family with your Holy Spirit. Amen
# 19 Jun at 6:32 pm
Tears flow for you today,as a mother you must be just wanting to pick Aria up and say”look I am her mum let me sort it”,BUT,we must WAIT on the LORD,so hard for you all but we will keep praying for dear little Aria to keep up the fight.!!!!!!:)
# 19 Jun at 6:44 pm
Reading this in Chile. Doesn’t matter where we are or you are. We meet together at the Throne and remember: God is still on the Throne!
# 19 Jun at 6:50 pm
praying here. Words just have no place. God knows
# 19 Jun at 7:16 pm
aw sweeties am praying hard for you all — i am praying that Aria turns the corner of this and does not need the oscillator – much love and light to you at this time
# 19 Jun at 7:17 pm
Praying so hard for our precious Aria and for her mummy and daddy to find true strength and peace in their hearts too. I know you can all get through this! Where there is life there is always hope. Hugs xxxxxx
# 19 Jun at 7:21 pm
You dont know us, but we feel we know you. We are praying for you and for Aria. God Bless.
# 19 Jun at 7:29 pm
Oh Anita, my heart breaks for you. As someone else said, where there is life there is hope…we will continue to pray for Aria and hold you all dear in our hearts. You are all so special. May the tools help Aria survive even though you don’t want to use them. Love to you all.
# 19 Jun at 8:25 pm
I know you will never stop fighting for Aria, & Aria is such a brave fighter for her life. Be rest assured that we (your friends & family) will never stop praying for Aria! She is a very special girl! God can, & He will heal Aria! God Bless!
# 19 Jun at 9:05 pm
Love to you all. Praying for you and your continued strength, and for precious Aria. xxx Sheryl
# 19 Jun at 9:56 pm
What a steep path to climb, keep on going, what a fighter she is stay close love to all.
# 19 Jun at 10:31 pm
Thank you Lord Jesus for healing Aria, amen.
# 19 Jun at 11:32 pm
So thankful for the pastoral support and care you are receiving. Much in prayer and you are always on our hearts. God is still good and knows the way and is with you every hard and painful step of this journey.
# 19 Jun at 11:56 pm
We won’t give up the fight either. We will pray and pray. Please God. And please may the osciallator not be needed. I also pray that you, Anita and Hamish, may feel the love of your fellow believers around the world, and be strengthened by it. These are days too difficult for words. With our love, Kia Kaha. We fight a good fight, and we fight on for Aria. XXX
# 20 Jun at 12:03 am
Hamish..angie here. I’ve been thinking of you a lot today. Happy Father’s Day. You are an amazing Dad. You lead your family even through the broken places. You play. You love your Anita. Just want you to know that we think you are a gift. We will NOT stop praying for you all.
# 20 Jun at 12:35 am
We have never met you but have followed Aria’s story. We just wanted to let you know we are thinking of you and sending our love. Aria is such a special little girl and we just pray for the strength she and you all need to get her through this xoxo
# 20 Jun at 12:44 am
praying for you at Waihola Church yesterday. May your really know God’s presence at this time.
# 20 Jun at 12:45 am
My life is busy and stressful, but I always take time to remember and pray for you all every time your blog pops into my email. And although we have never met, my tears often flow for you – as they do now. Be strong. Keep smiling for Aria.
# 20 Jun at 1:53 am
Thinking and Praying for you all.xxx
# 20 Jun at 1:55 am
My heart goes out for you, as it does with others from MNL church in Manurewa. May God give you the grace and strength to face each day; and to trust that He knows, and has your best interests at the centre of His heart. Psalm 62:5-6
# 20 Jun at 2:14 am
Praying as always for Aria and you all. In Jesus’ name.
Blessings, Judy.
# 20 Jun at 3:05 am
Don’t be afraid of the dialysis….if it can get rid of the fluid and give our wee Aria better breathing space it has to be good. Yep where there is a fighting little spirit as Aria’s, and with the love of her wonderful parents, God must prevail. Kia Kaha and lots of kind thoughts.
# 20 Jun at 4:00 am
Keeping you all in our constant thoughts and prayers. Love Jude, Dan and Bonnie
# 20 Jun at 5:55 am
With you ox
# 20 Jun at 9:57 am
Praying for Gods guidance and presence in and around you.
Love, the Elsaessers
# 20 Jun at 8:37 pm
Dear MacDonald’s,
My thoughts and prayers are with all of you. May God grant you his mercy and peace in this difficult time. What a joy to know that Aria is now safe in her Savior’s arms and she is totally whole and healthy. I know that you long to see her again, and you will. For now, treasure the time that you had with Aria and use all that you have learned to help others. For now we see in a glass dimly, but then, we shall see face to face.
Press on & God Bless,
Randy Mayfield USA