Time Machine
Today we got into a time machine.
We went back to Starship for the first time in 2.5 years. Â It was really hard.
We went because Sylvie was being tested for the same disease Aria had.
We don’t think she has it (neither do the Docs really) but if she does it is a minor form of Hirschsprungs.
I can’t figure out how a place that was essentially a second home to us now feels empty and hollow.
We are no longer ‘part of the furniture’ at Starship like we were.
Starship was one of Aria’s favourite places. Â She could be quite unwell in the back of the car with a central line infection but when we drove up the hill and she saw the hospital she would always say “Yay Star!”
We had the same pram/pushchair/stroller that she spent many hours sitting in as we pushed her around the halls of Starship/Auckland Hospital, much like we did at UNMC. Â Except it was a different little lady in that pram who will never know her big sister. Â Tragic.
On the bright side we got to see some familiar faces which did our hearts good. Â We miss our lovely medical teams in Auckland and Omaha too.
God brought this verse to mind as we drove home. Â Aria’s disease is fully healed, not as we wanted in a worldly sense but fully and totally in a heavenly one.
Psalm 103:2-4
2 Praise the Lord, O my soul,
and forget not all his benefits—
3 who forgives all your sins
and heals all your diseases,
4 who redeems your life from the pit
and crowns you with love and compassion,
37 Responses to “Time Machine”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 28 May at 2:05 am
Huge hugs, must be so hard going back there. Hopefully the tests will come back all clear.
# 28 May at 2:14 am
Thinking of you guys. LOTS. xxx
# 28 May at 2:52 am
Im praying with all my heart that Sylvie is ok
please keep us informed
my great nephew has it 🙁
http://helpbabyjayden.wordpress.com/
hes ok at the moment
however Im praying for him too
# 28 May at 2:54 am
I hope all will be well with Sylvie – much peace and healing to you and Hamish Anita . . What a wee trouper Aria was -blessed that she be wonderfully happy with the God and Angels galore <3
# 28 May at 3:18 am
Can’t believe it! Twice in one family seems so unfair but trust in the Lord – Sylvie will be OK.
# 28 May at 3:18 am
Thank you Anita for keeping in touch. Your family is in my thoughts often and I look forward to all your updates.
Stay safe and strong.
All my love to you, Hamish, Asher and lovely little Sylvie.
# 28 May at 3:19 am
Thinking and praying for you all!
# 28 May at 3:25 am
Sorry you had a hard journey to make today….. but so lovely to get an update from Aria’s page in my email….. I know much was hard – but I do miss hearing about Aria’s good days and small & big achievements and seeing photos of those smiles she so bravely managed. She melted my heart your little blossom……As long as I live I will remember her.
I hope the test results come back good, hope you don’t have to wait too long for results, and look forward to meeting little Sylvie one of these days and giving you a huge hug! (yep, even if it’s in the local supermarket!!! 🙂 xxx
# 28 May at 3:35 am
Best of wishes as you wait for test results. I can only imagine how hard it must be for you. Keep trusting God.
# 28 May at 3:37 am
Wow- this news was a bit of a bombshell- but really praying that you get good results. Thank you for keeping us in the loop
# 28 May at 4:11 am
Gosh it is just a wait and see but you guys will handle things in your usual great way. What special people you are love to all
# 28 May at 4:23 am
Thank you for the update. We check here often for news of you and your dear new Sylvie. Still praying for God’s continual comfort for your loss.
# 28 May at 4:57 am
I was wondering if everything was ok as hadn’t heard anything in awhile. Now I know to keep praying for your little family. What a tough day, but a special day too. I hope your little one is ok.
# 28 May at 7:44 am
How our hearts ache for you as you walk through the halls of Starship! Praying that among the sad and painful, there will be some good memories and that the testing on your precious second daughter will be favorable! Miss you all; miss Aria. Love sent your way from across the world.
# 28 May at 8:43 am
Praying for your family, and especially little Sylvie. You are strong and will get through this with courage and grace.
# 28 May at 9:19 am
Our thoughts and prayers are with you as you await the results of the tests. So glad you updated the website. Thanks for keeping the other side of the world informed so we can better pray for you.
# 28 May at 10:35 am
I think Sylvie will be a trooper like her big sister. Sylvie may not know Aria here in this world, but one day they will meet in heaven. Praying that God will give the docs. the skills to find out what’s wrong with Sylvie, & that whatever it is, is very treatable! God Bless!
# 28 May at 10:44 am
It is *very* hard for me to go back to the hospital where Eithene was treated (and where she died). I’m sorry that you had to be back there with your youngest, but hope that you found some healing a closure from seeing Aria’s drs and nurses. I too take great comfort from the knowledge that our daughter’s disease is healed, and she is now whole. (hugs).
# 28 May at 4:52 pm
YES PRAISE THE LORD WITH YOU. BEST OF ALL IS WE HAVE ETERNAL LIFE THRU CHRIST AMEN, YOU AND ALL YOUR DEAR CHILDREN, PRAY WITH YOU.
# 28 May at 7:24 pm
I always love getting a post from you. You are all in my thoughts and prayers. Aria was the most special little girl I have every known. She changed lives and will never be forgotten. I am praying your precious Sylvie comes back with good test results. Love to you all.
# 29 May at 2:24 am
Thank you for your update so we know specifics to pray for. Blessings to you all especially little Sylvie. Judy.
# 29 May at 8:48 am
Thank for the update. Will be praying.
# 29 May at 10:54 pm
Praying for little Sylvie.
# 31 May at 7:18 am
How encouraging to remember that in all our experiences God’s love is CONSTANT, UNFAILING AND UNCONDITIONAL!
# 31 May at 7:30 pm
Sylvie is covered by my prayers for health and happiness – best wishes and hugs sent her way from the East of England. Angel Aria watches over you all, this I am certain of.
Nigel xxx
# 5 Jun at 5:09 am
Thank you for keeping us up-dated 🙂 I am always on the look out for your up-dates. Praying that miss Sylvie’s test results come back all good 🙂 ((((HUGS)))) <3
Belinda.
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# 18 Jun at 1:07 am
why you had the same pram/pushchair/stroller that she spent many hours sitting in as we pushed her around the halls of Starship/Auckland Hospital?
# 26 Aug at 8:09 pm
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Regards,
Henry
Wellington
https://www.builderswellingtonnz.kiwi/