Blood…
Aria has just started a blood transfusion.
This is good news for a couple of reasons. A) It allows Aria to go back on Status One, therefore having a wider net to catch some organs in. B) It means that Aria stays in PICU for another week where she and we have become accustomed and settled in.
Aria’s blood count dropped further overnight so the decision was made to transfuse to keep on top of her continually dropping blood counts.
Aria has been in a great mood so far today, laughing, smiling and talking as we played and walked around the hospital with Asher and Mummy. Today’s activity of choice was finding as many metal men (bronzed statues) as we could in the hospital. Both Asher and Aria enjoyed spotting them and playing with them. One of the challenging things about staying in one place all the time and seeing the same things over and over and over and over and well you get the point, is trying to find new ways to stimulate Aria. So we think of things to look for or do while we walk, it makes the experience more fun for everyone.
Anywho, we have another week of status one/PICU and the anticipation/hope/frustration that brings. It is tough to juggle the balance between hope and expectation of what God will do, with the reality that it will happen in God’s timing. I’ve been trying to embrace the fact that it will happen at the perfect time and God knows when that it so we don’t have to concern ourselves with the timing of that in the meantime. Â That way we can just enjoy each day as it comes without stressing about ‘the call’. To be honest it is nice in theory and we try to live that way but it is hard to not wonder what on earth God is waiting for…..
Thanks for the prayers that Aria would stay Status One, God answers prayers, Aria’s life is living proof.
7 Responses to “Blood…”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 25 Jan at 7:53 am
I would like to ask a question and I hope it doesn’t offend anyone
Is Aria sicker than Matisse Reid
I hate to draw your attention to Matisse you have enough on your plate already however that poor girl is still waiting for her transplant. When I read the news recently I nearly cried to think that she’s still waiting. I don’t want Aria to have to wait that long. I have a deeper connection with our girl as I have sponsored her in the past and after losing the internet for a year due to my ex and I splitting up am looking to start giving again very soon. I also am a regular reader of this blog.
I pray Aria gets her transplant very soon
Please God come and give her life and life to the full
She’s so precious and beautiful
HUGS
Jen
# 25 Jan at 8:14 am
we will count this post (and the Mickey D’s one) as a PRAISE….and yet continue to seek God for peace in His timing!! Love you all!
# 25 Jan at 9:46 am
Happy that Aria was able to stay status one and praying for the organs.
# 25 Jan at 10:02 am
Thank god
# 25 Jan at 4:21 pm
Yes it sure is hard waiting and wondering. You guys are an inspiration to us. Hope the transfusion is over now and that Aria is out on the hunt again for something interesting like metal men! Keep walking Aria and don’t let Ashie get in front!
# 25 Jan at 10:05 pm
That’s fantastic news!
# 26 Jan at 12:31 pm
Always know when Hamish has written the post (before I have seen the name at the top) by the inclusion of the word ‘anywho’!!! 🙂 (my hubby says it too! must be a bloke thing!)
So good to hear that Aria will remain status one for another week – keeps the net a little wider on the transplant front. Even better to hear that Aria is pretty happy, smiling and laughing are just wonderful words to read!
Hope you are all doing ok and Anita is milking the 2 day birthday thing!!! Happy birthday Anita!