Not CVL Monday
Ok so today wasn’t CVL (Central Veinous Line) Monday and it isn’t like it is happening tomorrow either.
Aria’s surgeon is away until tomorrow so it is looking more like Wednesday. She is ok at the moment so I think we can wait until then. We really want Mr M to do it cause he knows Aria and he is the best (and very nice).
Today was better. Aria slept for 2 hours and so did Asher (at the same time woohoo) so Hamish and I went for a nice walk and hung out at the family rooms. Aria only got pricked once 🙁 Her luer tissued in her little hand AGAIN. Hamish and I both went in to sing and dance and make idiots of ourselves but it is totally worth it if it makes Miss get thru it a bit better. Aunty Alex had Asher and he managed not to water on her this time.
The grand plan was also for Hamish to go to work today but last night I had a bit of a tummy bug incident and was feeling terrible in the morning.  Feeling 100% now, I am wondering if it was stress related.
So tomorrow my sister is coming in and then Nola and Aria’s nana. Still at some stage I better suck it up and do a day by myself.
Ali- come and visit, I would love to see you. We go walking lots over at Auckland Hospital so might see you.
8 Responses to “Not CVL Monday”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 11 Feb at 9:19 pm
Very tough days for you all!!!!
We are praying for Aria. May the Lord grant you all peace, grace and strength.
Love the Sonnevelds
# 11 Feb at 9:30 pm
Sorry to hear that the CVL didnt happen today, but sounds like the plan will have it done all in good time. Great to hear you have wonderful family and friends coming to the hospital to support you – you could do it alone, as parents we kind of manage day by day what we get thrown into, but it is awesome you have people who want to be there with you. Hope that beautiful daughter of yours is managing ok, and that you are all getting some rest and bearing up ok. We keep you in our thoughts.
# 11 Feb at 10:06 pm
Oh hun I am so so sorry, I know how horrible it is loosing lures, I cant even remember how many times they had to redo mine 🙁 I so hope that wednesday is the day for you and thank goodness for sisters. If you need a hand on Thurs or Friday give me a text, as P is home so I can leave the kids with him. Hugest hugs to you all xoxo
# 12 Feb at 3:48 am
Hoping that Tuesday will be a good day for you all.
I know how hard it is being in there for an indefinate time . Sending happy healing thoughts your way.
Big Hugs for Aria
# 12 Feb at 6:31 am
Hope Wednesday is the day
sending you lots of good thoughts and healing prayers
# 12 Feb at 2:26 pm
Oh Anita, I am thinking of you and your family. Those are some broad shoulders you have! You and Aria are in my thoughts today, as they have been for a while.
Take all the support you need to help you and your family through every day — no one will begrudge you this small mercy. There is always a day in the future you can help out in kind; one of lifes happy equilibriums! (Something that we too are learning — to be humble!)
Will look forward to hearing some good news soon.
Ellis sends a giggle and a gurgle to cheer you up. (I won’t include the spit-up, as it seems you — or your sis — have enough bodily fluids to keep you occupied!!)
xx Neala
# 12 Feb at 3:04 pm
Thinking of you all and prayers going up that the CVL happens as soon as it can.
I am glad to read that you have been surrounded by support from family and friends during this hospital stay – yes you could do it by yourself, of course you could – but I am so thankful that you don’t have to! It is a small mercy in this long hard journey that you are all doing so brilliantly with!
Hugs to you all!
# 13 Feb at 9:55 am
I feel for you and send prayers and healing to aria you and Hamish- keep strong –