Numbers
97
As we have been with Aria over the years we have gotten to understand the myriad of numbers that relate to Aria’s health. These have always helped us to understand how Aria is coping and what is going on with her health. Today I came into the PICU and was amazed by that number.
97 was her heart rate, never before has a 2 digit number made me smile so much, I couldn’t believe it. I didn’t even know that Aria was capable of having a two digit rate.
I really hope this means that now she is free of that huge tummy that she had and everything has a bit more room and they have her nicely comfortable that she doesn’t have to work so hard. Aria is a fighter and has been fighting her condition every day for three and a half years, I really hope that now the fight is a lot easier for her.
There is still plenty of fights to come I am sure, their battle for transplant is over, but the war is not over. Now she battles rejection and infection. She has some wonderful staff on her team and a whole heap of prayer from all of you. We are really hopeful that she is now on the path to a good life where she doesn’t need to fight every moment to get by, but she can just enjoy being a little girl.
UPDATE from Docs Rounds this morning
Aria is currently getting a 9/10 for her recovery!  Everything is going pretty well.  They would take her off the vent today but she is going back to the OR tomorrow morning for a washout so there is much point in taking it out.  Her urine output is a bit low in the past couple of hours.  They think perhaps urine is leaking into the abdomen thru a leak where they connected her kidney to her original plumbing.  But they are checking her drains to see and will fix it when she goes to the OR tomorrow.
They are dropping her pain meds and she is waking a bit more. Â Not sure if she look less yellow today, perhaps it might be a slow process. Â She does look great though. Â Also they changed her wound dressings and they look good. Â She is still ‘open’ because when they finished the transplant they knew they would have to wash her out so left her open.
28 Responses to “Numbers”
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Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
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# 7 Feb at 9:16 am
Wonderful news this sabbath day.I pray that you all and Aria will feel the prayers being lifted up for you.Also for the wonderful family that donated their child’s organs.
# 7 Feb at 9:17 am
Our Sunday School will be thrilled with this news!! Much prayer is being offered for Aria and her family thru this group. God bless you as you watch each miracle unfold.
# 7 Feb at 10:21 am
What a wonderful post for me to come home from Mass and see! Contining to pray, always!
Laurie, fellow UNMC mom
# 7 Feb at 10:45 am
Awww brill news xxx first thing the boys asked this morning is ” how is Aria?”
Luv and hugs to you all xxxx
# 7 Feb at 10:49 am
Prayers are with all of you. Those first few months post transplant are such a roller coaster. I am so happy to hear how things are going. So from here in Virginia we are praying for Aria. From a Mom who understands—not all paths are the same I know–but know the good can happen. Makenzie is now almost 7 years post transplant and lives a pretty normal happy life. Here is hoping the same for you. God be with all of you…
# 7 Feb at 11:13 am
oh I do pray it will be so
# 7 Feb at 11:30 am
We will continue praying! Lifting you all up to our God who is in control!
He is Good!
Love you
# 7 Feb at 11:36 am
Praise God from Whom all blessings flow.
# 7 Feb at 11:41 am
Praise the Lord for such progress!
Tony
# 7 Feb at 11:46 am
Just wanted to check in.
Love
Thomas x0x0x0x
Age 9yrs
# 7 Feb at 11:50 am
Yay! you go Aria!!!! praying for you all!
# 7 Feb at 12:16 pm
go Aria!!!
# 7 Feb at 12:36 pm
Great numbers Anita! Those little digits that indicate SO much. Wonderful…. may Aria’s little body keep fighting on, getting stronger each day. Much love and prayers
# 7 Feb at 12:40 pm
What wonderful news to wake up to. My thoughts have been with you all over the past few days. xxx
# 7 Feb at 1:12 pm
Such awesome news. Thank you for all the updates. Praise God for His goodness and mercy. xxx
# 7 Feb at 1:27 pm
I’m glad that she is doing well so far, & I will keep praying for her!
# 7 Feb at 1:34 pm
well done aria! hugs anita.
# 7 Feb at 1:46 pm
Absolutely wonderful news! Praise God in the highest! Praying constantly for you all! Love and hugs, Steph Steven Ashley & Joshua xxxx
# 7 Feb at 1:53 pm
Wow! With tears in our eyes, we are praising our great God! I was awake for a few hours last night just thinking of you and praying for you all. It was wonderful to read this post this morning. Will come by to see you again today or tomorrow…until then please call if you need ANYTHING!
# 7 Feb at 1:56 pm
So happy to be reading the wonderful posts the last few days!
# 7 Feb at 2:40 pm
Just want to add my name to all those rejoicing and praying.
With love ……
God bless you and hold you all tight.
Eve (England)
# 7 Feb at 2:47 pm
She’s a special girl and god is her strength and i’m sure that angels are by her side helping heal her – i pray for her this wonderful miracle
# 7 Feb at 3:22 pm
Go Aria!! Wgat awesome progress. May God continue to strengthen and heal her. xx
# 7 Feb at 3:45 pm
Go Aria!!!!!!
# 7 Feb at 4:30 pm
It is so great that Aria is doing so well. Praise to our wonderful God.I pray that she will continue to improve.
Judy.
# 7 Feb at 4:34 pm
Yay so neat to see her doing well. hope it continues. sending you all love and strength
# 7 Feb at 10:18 pm
Talking of numbers here are some for you Anita and Hamish: 32:3 and 4 and the book is Deuteronomy.
And some numbers for Asher too: same book and the numbers are:33:24 and 25.
And specally for Aria: same book, 33:27. Repeat the verse to her even as she sleeps.
Love to you all
# 31 Dec at 8:31 pm
Frightening and Fabulous- a year in review. - Aria MacDonald says:[…] She did great. But after 10 trips to the OR and weeks on the vent, the transplant had failed and we said it outloud […]