Hospital life is painful
Today was a really hard day for Aria.  They had to take her off a pain patch she was on because it was lowering her blood pressure AND they started her on steroids.  Have you heard of Roid Rage?  Maybe Aria had that and a bit of withdrawal from the pain patch cause she was pretty wild today.  It was really hard for Hamish who spent most of the day with her.
All in all I think that she is doing good, all her vitals are stable and it looks like she is responding to the ABX.
You know when you live in a hospital you form a little community of people struggling with the same thing. Â You compare notes and encourage one another. Â And ask ‘How is your baby today’ Â Hospital life, esp in PICU is hard hard hard. Â You watch not only your own suffering but those around you. Â Sometimes there is such awful tragic circumstances you realise your heart is broken for yourself and those around you. Â You realise your nightmare could actually be someone elses dream.
For those of you of with children with breath in their body, a beating heart and hope for their future you are living a dream. Â I am living a dream as I look at my girl. Â A dream. Â There isn’t even a word to describe the lives of those with healthy children. Â But you are a very very blessed.
16 Responses to “Hospital life is painful”
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# 30 Mar at 6:34 pm
Anita,
Much, much love to you
xxxx
# 30 Mar at 6:49 pm
hugs
# 30 Mar at 7:00 pm
(hugs) We love you guys. Hopefully one day we can meet. I’d love to give you all a HUGE hug. xoxoxoxo God Bless!
# 30 Mar at 7:09 pm
I hear you. It’s amazing what you can take when you realise how different it could be. You’ll take the blessings you have when you compare notes with other hospital families. You have so much hope for a future with Aria, and I don’t say that lightly, because I know how hard it must be for you right now, but still, there is so much hope. I’m so sad that Aria has had a hard day, and Hamish too. But it shows how much spunk she has in order to be that grumpy and angry and fight! Hugs to you all xxx
# 30 Mar at 7:15 pm
Just want you to know that I’ve been very aware of the blessing of my healthy kids thanks to you and a few others. I’ve never been more grateful, and think about it often. And each time I say a prayer for little Aria. My kids LOVE praying for Aria, but don’t quite understand why God hasn’t healed her body yet. and I suppose they aren’t the only ones. 🙁 You are in our thoughts and prayers multiple times a day. The kids pray mostly for Aria, and I pray mostly for you (and Hamish). 🙂
# 30 Mar at 9:02 pm
Jesus has a very special heart for those who suffer and he knows each tear and heartache that you all experience. Maybe one day we will understand how some of us are blessed with healthy children and others are taken down a different path. But he is still holding you and will not forsake you. Praying that Aria too will know his special presence sustaining her through all of us. God’s outcome will be good because He is good! Love you heaps
# 30 Mar at 9:03 pm
“Lord Jesus wrap Your arms around Anita and Hamish tonight and remind them that Your love never dries up. Please give them a special sense of Your Presence and a deep refreshing sleep.
For wee Aria Lord Jesus, all we can say is that You love her far more than we do, and You won’t let her suffer more than she can bear. Bless Ashie too and fill his days with happy memories in spite of the sadness he must often witness around him. Amen”
# 30 Mar at 9:19 pm
What special thoughts, Anita, from you and from those who comment on your blog!! Thank you for your wisdome and insight and the blessing you and your family are to us and to so many!! I spent some time this a.m. sharing your story with an interested neighbor and was able to testify to her of your continuing faith and reliance on our God. Yes, your Aria is a true fighter and we again lift her up in prayer.
Love you guys!!
# 30 Mar at 11:27 pm
aye sweeties i agree with you there – having a sick child is a harsh, and often isolating experience – and it amazes me how brave these dreadfully sick children and there parents have to be because you either go with it or go stark bollocky (a wee bit of a silent scream or a loud one if you have a place to let rip can help if the plot is getting lost a bit lol)and pray – god is always there and the love is soooo strong and a wondrous thing but what a harsh hard journey – my thoughts always are with you – i hope i was not rambling too much lol
# 31 Mar at 12:44 am
praying for you all
# 31 Mar at 12:55 am
We are blessed, thank you. Sending out love as you live alongside the struggles of others, as well as your own.
# 31 Mar at 4:46 am
Praying that things will get easier for you all. I am ever thankful for my Grandchildren and Great Grandchildren who are all healthy and I feel your pain seeing your Aria suffering. One of my daughters died suddenly at age three years and nine months(42 years ago)and I remember being grateful that she didn’t suffer. Yours in Christ,
Judy.
# 31 Mar at 7:57 am
Awww thanks for reminding us how lucky we are to have two healthy boys(for which we do take for granted at times) who are able to drive us bonkers ;o) xxx
You are on all our minds xxx Love, hugs and huge snogs xxx
Fran & Dan xxxxx
# 31 Mar at 11:31 am
Everyone has said it once again.
We all feel for you, although I have not had to go what you are going through. God gave us paradise, a perfect place for us to live and we, humans, have polluted it so much, that we have brought these illnesses and diseases upon ourselves. God does not want one of us to suffer at all. God loves us and wants the very best for us, He gave us the very best.
My love and prayers are with you daily.
I think we all feel a little frustrated because we can’t do more for you.
Eve
# 31 Mar at 7:37 pm
Feeling for you both and understanding how hard the road can be. The bumps are so hard. Praying heaps.. xx
# 31 Mar at 10:05 pm
Yes you are living in a dream but God has promised you that life isnt going to be easy Dreamsdo come true and when you get back to New Zealnd it will be like heaven has opened its doors just hang in there our prayers are always with your family