Next week is going to be a BIG ONE

10 Apr at 6:28 pm by Anita MacDonald

It is saturday night as I write this and we are pondering the week ahead.

Aria is most likely going to get another shot at extubation on Monday, she had another 14 hour sprint today with perfect gases. Â We are so so hoping she flys. Â For lots of reasons the smallest being I want to go a kids clothing sale in the early evening and want to be able to leave Ash with Hamish (or if anyone would love a couple of hours with the best 2 year old in the world….?). Â The biggest being IT WOULD BE COMPLETELY AWESOME TO HAVE ARIA OFF THE VENT AND NOT HAVE TO HAVE A TRACH!!

Tuesday we are having the inspection of our new place and our KIWI VISITORS arrive!!! Â The film crew, Emma and Ben are coming back to do some more stuff with us.

Wednesday is filming and MOVING DAY! Â Omaha lovely people- if you are able to give us a hand please let me know? Â Anytime from 3pm onwards. Â Even if you could spare us an hour that would be fab. Â Warning- you may find yourselves being filmed but you can say if you don’t want to. Â We just need help taking boxes down the lifts and into cars and over to our new place.

We will probably keep our room at the Lied until Thursday night/friday morning although if Aria is off the vent we will be able to room in with her! Â Another big reason to pray our socks off that she flys on Monday.

Thankfully (although we were disappointed) the move to the new PICU was put off for another week. Â The current PICU is an old adult ICU and it is very average indeed so we are looking forward to moving.

So lots of big things this week please pray for us and Aria.

Aria had a big temp this morning 39.8! Â Yikes! Â They restarted an ABX they had stopped yesterday and now she is perfect at 37. Â Nothing major to report apart from that.

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10 Responses to “Next week is going to be a BIG ONE”

# 10 Apr at 7:39 pm
joyce says:
What wonderful news this is. Will be having lots of things on the prayer list. Sorry I am in Texas and cannot help you out.Oh, for little Aria to get off the breathing stuff.
# 10 Apr at 9:04 pm
Amber says:
Best of luck for next week. Will be thinking of you all.
All the best with the move and getting Aria off the vent and not getting a trach!!

Love to all. Would love to help you move but I am in New Zealand!
# 10 Apr at 9:43 pm
Lisa Raymond says:
I’m in New Zealand but if I have won the lotto I will fly over! Best of luck Aria – try hard little girl and get rid of those tubes – We will pray hard for you tonight. Love Lisa and my little 7 year old Tegen.
# 10 Apr at 10:14 pm
Lindsey says:
John will be off of work at 3:30 Wednesday afternoon and will head up to help you! I will send him to Aria’s room, unless you would rather he go to your room in the Lied, let us know. I won’t be much help with the girls… (: Maybe we can help UNpack!
# 10 Apr at 10:23 pm
Kathleen and Anita says:
Sounds like a busy week ahead. So glad you are going to be able to spread out and live in an apartment instead of a Hotel room. Sad we are too far away to help with the move but we will help by praying!
Look forward to viewing what the film crew comes up with. Let us know where to look won’t you!
# 10 Apr at 11:51 pm
jen says:
praying for Aria
I pray she doesnt need the trach
and the extubation goes really well and to plan

I pray that the filming goes well and you will be in my prayers re the moving
If I lived closer Id come and help
# 10 Apr at 11:56 pm
Natalie and Cody says:
i’d help but its a bit far to come dang it – i pray that Aria will do well re extubation and won’t need a trach – i pray that she stays infection free – am praying for a stress free move and am praying that you have serenity in the following days – and Yay won’t it be great having an apartment 🙂
# 11 Apr at 2:37 am
Shirley Davy says:
Good on you Aria for 14 hours off… that’s great. Will be praying for strength for Aria as she adjusts to extubation… may it be successful…. so much to pray for for you guys this week…hoping you enjoy making the apartment your home. X S
# 11 Apr at 7:52 pm
Tiffany Keller says:
Lots of things to pray for, for sure! Praying always helps! Sounds like you need prayer for sanity on moving day, as well as for Aria! I pray everything goes well! God Bless!
# 11 Apr at 8:59 pm
Samantha Sutherland says:
Great news about Aria’s sprint! Will be hoping for a great result for extubation – now wouldn’t that just be amazing for you all to have that darn tube off her face! Good luck for moving day – like everyone else I wish I could be there to help you guys move but look forward to pics and updates on your fab new apartment and your new life with more space! Yay! Take care, love s xx

Next week is going to be a BIG ONE - Aria MacDonald