Hamish’s Make-A-Wish Trip
We are gearing up for Hamish’s Make A Wish Trip this weekend 😀 What is his wish?  A trip to Texas to watch his favorite team the Houston Texans at their home gound!  They are playing some obscure team, something cowboys ;) !!! Our friends Lori and Todd have made it possible along their parents and other faithful texan friends who read this blog.  It is wonderful to have such amazing generous friends here!  It is very exciting, except for me who is a touch nervous about having the kids alone for the weekend.  Actually looking forward to the challenge and being Queen of the Castle.
Aria is doing awesome still.  She started walking by herself on Saturday but strangely we haven’t seen it since.  But least we know she can do it!  She is also drinking her milk and eating plenty.  Also off o2 at night although sometimes we put her on.
The other good news is that we see the food she is eating is actually going thru!  It is coming out the other end digested in little bits.  We have gotten a few questions lately about Aria’s new tummy set up.  To clarify.  She isn’t on TPN/IV feeding anymore and 100% of her nutrition is going thru her new small intestine.  She only received a small intestine during transplant and her own large intestine/colon doesn’t work because of her disease and was removed at transplant.  SO the end of her new small intestine is brought out to the surface of her skin, called a stoma and that is how she passes her waste.  She has a little bag that sticks on to catch it.  Perhaps one day *maybe* she might have it connected to the right hole, but science needs to advance first.
The final installment in the Aria trilogy airs this Sunday, 8.30 am Channel One.  Aria’s story is also going primetime!  The TVNZ current affairs show Sunday is picking up her story and that will air 3rd of October at 7.30 pm.
Anyway- dinner time here I better go.  Aria is currently putting Daddy in time out, better rescue him!
18 Responses to “Hamish’s Make-A-Wish Trip”
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# 22 Sep at 6:31 pm
Great. It is so good to see God’s goodness in action.
# 22 Sep at 6:38 pm
excellent – love Attitude TV!!! Good to hear all is going well xxx
# 22 Sep at 6:45 pm
Have a great trip Hamish. Delighted to read of Aria’s continued progress.
Love the Bracefields
# 22 Sep at 6:55 pm
So glad things are going so well. Happy that Lori and Todd are giving Hamish his wish. He will have a blast. Yea Texas!!!!!!!
Don’t worry about being alone with the kids. We will just pray hard that all goes well for you and trust that he will make it so.God will be right beside you.What a wonderful family you are.Keep up the good work Aria.
# 22 Sep at 7:34 pm
I bet Hamish will have a great time! I bet Aria will be walking by herself non-stop, in no time! 🙂 Have a great weekend, & God Bless!
# 22 Sep at 9:11 pm
Aria must be feeling to put Daddy into time out! made me loaugh. Great to hear all your fantastic news. Have a great weekend. Are You getting to have {“make a wish).
# 22 Sep at 10:16 pm
hope Hamish has a nice time
and you and the kids have a nice weekend
pleased to hear that Aria is doing well
LOL what daddy do to have to be in time out???
# 23 Sep at 1:28 am
Great to hear that Aria is doing so well. Praise the Lord. Have a good weekend Hamish in Texas and Anita with your two Children to yourself. Blessings to you all.
Judy.
# 23 Sep at 1:57 am
Hee hee Aria putting Daddy in time out. No flys on her, she knows all the tricks of the trade!!!
Does the timer go far enough to count all the minutes he have to spend there, & what’s more get out in time for his Make a Wish!!
Smart cookie Aria, you sure do make us laugh.
# 23 Sep at 3:19 am
Texas – yayyy. If Hamish goes down Highway I45 to Houston he will go right through Fairfield which is Bill’s home town and where I lived for 2 1/2 years. Wonderful to hear how well Aria is doing. She is often a topic of conversation amongst us at Church and what the latest blog says. In fact I often take a printed copy of the past few days for Mum and others who haven’t seen it for a while. Glad things are a bit more settled at present. Lots of love to you all.
# 23 Sep at 12:00 pm
YEA!!!!!!! SUPER EXCITED FOR HAMISH!!! You are going to do AWESOME by yourself!! Extras prayers for that time 🙂 So happy for Aria doing SO WELL!!
# 24 Sep at 2:23 am
I was watching “Attitude” on TVNZ and it said that Aria would feature on the programme next week. I’ll be looking out for it!
# 24 Sep at 3:13 pm
so happy aria is now able to eat & enjoy her food. praise god for all his goodness!! i will be watching attitude tomorrow, and the sunday programme on the third. anita, i’m sure you and the precious two will be fine this weekend. have a great trip hamish.
# 25 Sep at 2:18 pm
Hi. Just watched Attitude. Wow the progress is wonderful to see. Love Arias gutsy attitude. Mum and Dad you definitely did right by your daughter and are very courageous people. Glad you are getting your Wish Hamish to see Texas play. You all look good and apartment looks really nice. Look forwarding to seeing you back in NZ in 2011 !!!! Xxxx
# 25 Sep at 5:19 pm
Just saw Attitude and as per norm they have done a wonderful program on Aria. Will be watching out for it on Sunday as well.
# 26 Sep at 2:58 pm
i also watched attitude yesterday. it is one thing reading about aria’s distress during physio, where your brain gives it’s own imagery, actually seeing it & hearing her call for daddy is totally different. i loved her cute walker, and the rice pills was just priceless.
# 1 Nov at 5:03 am
err I keep receiving an error when trying to skip towards the subsequent posting
# 23 Nov at 11:17 pm
The Great Barrier Reef is situated about 22 miles off Cairns. Cairns has some world calss scuba diving on offer.