Coming along nicely.
Aria is doing really well.
Her oxygen needs are decreased, and we even took her out for a little bit today without her oxygen tank, YAY!
Physically she is doing well too. She is walking around heaps, always wanting to jump out of her push chair and walk around whenever we are out. At home she walks around amusing herself quite often and will go and get what she needs. Today Asher took the Wii remote control off her and went and sat on the couch, Aria took off crawling after him to get it back, its nice to see her take action to resolve an issue herself, rather than sit and yell at us. Aria had four goals set for her by her physical therapist before the last set of admissions and she is accomplishing three of them really well, we just need to get her practicing climbing stairs some more.
The other HUGE news for us at least, is that Aria pretty much slept through the night last night. Anita gave her a good talk about only waking us up twice last night, and Aria did just that, only two calls out to us which is a HUGE improvement over our normal nights. Hopefully that continues or even improves over the next few days. Good night sleeps can only benefit us all.
Well lastly we thought we would leave you all with this a little clip of Aria and Asher dancing to the Wiggles…..
20 Responses to “Coming along nicely.”
Leave a Reply
Support Aria
There are many ways that you can support Aria.
- Bank deposit
- Cheque by post
- Contact us directly
Subscribe to updates
Fundraising progress
Aria's support to date:
Progress meter: 75%
Links
- Hirschsprung’s disease
From Wikipedia, the free encyclopedia - Starship Children’s Health
The hospital that takes great care of Aria - The Kids Foundation of NZ
The wonderful charity that supports Aria
# 23 Nov at 10:49 pm
Yay! Go sweet pea. Love that video.
# 23 Nov at 11:25 pm
Yay great news, love the Dancing Ashie and Aria you rock!!
Pleased Aria had a better nights sleep. Praise God for good progress
# 24 Nov at 12:04 am
You go girl! LUVD the video. Determined little soul. I want to teach her to Rock’n’Roll!!!! You could’ve put a Billy Fury song on for Our little Aria!!!!! I think about you a lot. M x
# 24 Nov at 12:34 am
Amazing what talking through those issues can do with little ones when they are ready to hear it.
# 24 Nov at 12:37 am
Aw that dance was so cute – Asher makes no concessions!
# 24 Nov at 12:56 am
what better physio could you get! A great work out! Love it
# 24 Nov at 1:14 am
Hoe do you do it? How do you stay so strong and maintain your faith so unwaveringly?! My son has short segment HD. Today he was admitted at the local childrens hospital (toronto) for HD Enterocolitis. The house feels so empty without him! If course I know he is in the best possible place, and I realize Aria has bigger issues than his — so I struggle to find my faith, and to let it carry me and him along safely! I thought of Aria today and your family — and that’s where I found my faith — in your situation and your determination!! Stay strong!! Like you don’t have enough to worry about but still… Peope like Josh and I depend on you guys to light the way a bit! God bless our kids and families to tonight! Way to go aria!!
# 24 Nov at 1:33 am
THANK YOU! For that video, it was such an absolute delight to watch!
# 24 Nov at 1:52 am
Amen to what Corina said. Praying for continuing improvement for Aria and for more hours sleep per night.Judy.
# 24 Nov at 4:05 am
It melts my heart to see your kids having such a ball! Great dancing guys! Thanks heaps.
I pray tonight’s sleep will go well too.
# 24 Nov at 4:23 am
So very happy for you all. So special to see Aria at home doing fun stuff that kids do at home! Love to you all. We haven’t met, but we follow all of Aria’s updates and this little video is a thing of joy x
# 24 Nov at 4:25 am
PS Praise God!
# 24 Nov at 6:26 am
I love it how Aria even gets her tounge dancing and tells Asher to “go” when he gets in her way! LOL 😀
And Asher you are just too cute! 🙂
# 24 Nov at 8:39 am
What a precious video. Aria and Asher are so cute.Being home together is probally the medicine for all.
This Thanksgiving will be special in that God has been so good to your family and your family so uplifting to us.What a blessing we receive from it.So thankful to God for hearing our prayers and being so faithful.The video made my day.
# 24 Nov at 5:49 pm
I’m so glad to hear & see Aria doing so well! Love the video! It was so cute to see Aria & Asher dancing! Dancing like that will make Aria even stronger in no time. 🙂 Have a great American Thanksgiving! God Bless!
# 24 Nov at 8:40 pm
Great to see the Asher and Aria having so much fun. Pray the good nights will continue!
# 24 Nov at 9:21 pm
Super cute!!Thank you for sharing!!
# 24 Nov at 9:45 pm
Thank you for filming your happy little people and permitting us to share the dance!
# 24 Nov at 11:11 pm
Dear Anita and Hamish, it’s great to hear Aria is getting on so well. She is such a sweetie, and she has indeed come a long way.
Also, today is our wedding anniversary, and I know YOURS is not only the same date, but the same day!!! So I just wanted to wish you a happy day together as a family, and best wishes for tomorrow, your time. (PS: I hope I’m not letting any cats out of bags that you didn’t want let out, but I just wanted to send our regards anyway). Love, Nikki and Rob. xxxx
# 26 Nov at 1:32 am
Aria and Asher were so cute! Thank you so much for sharing it with us. Aria has come such a long way. It is a miracle. Love to all of you.