Back in
We knew it was coming and our hearts were right although we are a bit surprised.
Aria went into today to the treatment centre for her regular monthly appointment for an IV infusion and breathing treatment.  We took the opportunity to ask the nurse practitioner to come and see her which she did.  Aria was particularly sleepy this morning and her rate of breathing had increased a bit.
The truth is that Aria has only slept thru the night once since she has been home from hospital after the second transplant. Â Sometimes we get up for her once or twice a night, sometimes we get up for her 6-8 times a night. Â It is a tough going. Â Hamish and I are really tired and at our wits end really.
So together with her sleepy state, her sleepless night and these headaches it has been decided to investigate more to see if we can resolved whatever is bothering her.  Currently theory is is that the headaches are being caused by sleep deprivation because her breathing isn’t allowing her to get into a deep state of sleep.
So there are now four teams on the case. Â Neutro, ENT, Pulmonary and Transplant. Â An MRI of her head is scheduled at 3pm tomorrow. Â And there is talk of a trip to the OR for ENT and Pulmonary to jointly look at her airway and lungs again to check of any changes. Â Hopefully Aria should only be admitted for 2 nights.
In some ways we were a bit taken aback because when we asked the NP to see her we were expecting maybe a few extra breathing treatments and extra pain meds and to be sent on our way.  But honestly, if they can get to the bottom of all this and take Aria’s headaches and sleepless nights away, that would be the BEST Christmas present !!
Last year we were praying for the gift of life, this year the gift of sleep. Â Obviously we are in a much better place going into 2011.
We feel like we really treasured and enjoyed the past week or so at home.  If you have the privilege of having your family under one roof this Christmas, give thanks and pray for those who do not.
15 Responses to “Back in”
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# 20 Dec at 10:32 pm
praying for you guys. for answers, blessings, joy, and sleep in the coming days. love to all of you (:
# 20 Dec at 10:33 pm
Bless you guys- I hope and pray that the wonderful folk who are there to help you, can get to the cause of these problems and find a remedy. May you have a wonderful Christmas- even though you aren’t where you would like to be. May you REALLY know GOD with you.
# 20 Dec at 10:58 pm
May God bless you all richly this Christmas. We will be praying for sleep for you all! It is great to see the progress made throughout 2010 and we look forward to a return trip to New Zealand in 2011 with one healthy Aria!
We will be away for the next 2 weeks in the Bay of Islands so may our wonderful Saviour be your strength and guide.
In the Redeemer
The bracefields
# 20 Dec at 11:29 pm
Praying every team at the hospital can get to the bottom of her headaches & sleepless nights, & praying they will have the wisdom to make the right decision for her! Praying you & Hamish will be able to get some sleep! God Bless!
# 21 Dec at 12:27 am
Trust that this time in hospital will get to the cause of the headaches and lack of sleep. Will be upholding you all in prayer
and thinking of you all on Christmas Day and being thankful for the journey thus far. xx
# 21 Dec at 1:54 am
Praying for a resolution to Aria’s problems so you can all get some sleep filled nights. I hope you have a Blessed Christmas and a better New Year health wise, Judy.
# 21 Dec at 2:24 am
Praying for answers and a short stay, and rest for you all
lots of love xoxo
# 21 Dec at 2:24 am
Praying for answers and a short stay, and rest for you all
lots of love xoxo
# 21 Dec at 3:04 am
I do hope the headaches get sorted this time and you can all get
some sleep.
xxx
# 21 Dec at 3:37 am
Anita I don’t know you but you are such an amazing strong lady, who God uses to reveal himself through. I love your positive nature, and although you have your days as we all do, you always choose to look at those less fortunate. Praise God Aria has amazing parents. I keep you in my prayers that you may have your Christmas under the same roof, that God may bring revelation in every area of Arias health needs, that you may have good sleeps and that some time soon you may be on the plane back to your families. God Bless xxx
# 21 Dec at 4:59 am
I pray that you get your very best Christmas present – an answer to these problems so that Aria can come home, sleep all night, every night. And that you and Hamish can rest and recover. With love, Vikki
# 21 Dec at 7:22 am
Yes dear Anita so much testing of your faith dear ones. I feel for you guys you havent had a decent sleep for many days, I pray for Father’s perfect will for you all; for Aria that the teams of doctors and nurses can come up with right solutions for her to get better esp. without headaches, and lots of sleeping times. Sounds like sleeping beauty and her kingdom are in for a wonderful snoozing christmas time eh, thank you Papa praise you Father amen.
# 21 Dec at 7:58 am
Praying for rest for all of you!
# 21 Dec at 9:53 am
Praying for resolution of Aria’s breathing problems and for rest & sleep for all of you. May His peace and grace carry you through it all. Merry Christmas to you and yours. Hug the kids for me.
In His mighty love,
Carolyn O’Cain
# 22 Dec at 1:21 pm
Thinking of and praying for your entire family. May God richly bless you and may your wishes and dreams for 2011 come true xx