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We had the massive privilege of attending Meme’s funeral today. Â We felt really nervous but really wanted to go and pay our respects and honour this amazing little boy. Â Meme fought an huge fight, two transplants, and put up far far more than what the average adult could. Â He was a wonderful little boy and we will always remember him as a Ninja at Halloween! Â He has an amazing mummy and two amazing sisters. Â Rest in peace Meme.
I feel so grateful to be Aria’s mummy today. Â Everyday. Â She and all these transplant kids are so strong and courageous.
Aria is home. Â Turns out her and probably I had the ‘cruise ship’ virus or Norwalk virus. Â Geez wish we had actually been on a cruise LOL!! Â Her outputs are still on the high side so we are having to carefully watch and keep track. Â Thankfully they are ok with us being at home and replacing the fluid ourselves by topping up her feeds. Â Her feeds are going 24/7 right now, once things setting down hopefully she will be able to have time off the pump again.
Aria’s breathing and sleeping are also going well! Â She is pretty much off O2 during the day! Â Can’t tell you how great it is to not have to lug heavy O2 tanks everywhere. Â She is having the same treatments as Cystic fibrous kids, percussion (or banging as we call it) twice a day and Aria is coughing up stuff from her lungs that has probably been troubling her for awhile. Â She is still on her Bipap at night and there is debate in our house as to whether she needs it or not, we think probably not but doctors orders until we get this sleep study done.
Hamish’s Mum Christine arrives on Tuesday!! Â Yay. Â Looking forward to it. Â The kids are really excited to have Nana visiting!!
9 Responses to “Home”
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From Wikipedia, the free encyclopedia - Starship Children’s Health
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# 7 Jan at 11:35 pm
Great to hear Aria is home once more. Long may it last!!!!!!!!!
Best wishes for this year, whatever God has planned for you guys.
# 8 Jan at 12:44 am
Wonderful that Aria is home. SO pleased to hear Hamish’s Mum is arriving on Tuesday – we prayed that the Lord send you someone close (family) just to be there with you! Thank you Lord for your faithfulness. (Psalm 89)
# 8 Jan at 1:14 am
I am so pleased that Aria is doing better and that Hamish’s Mum is arriving on Tuesday. Praise God for His faithfulness. Blessings to you all, Judy.
# 8 Jan at 3:26 am
Praise God that Aria is home again and we are praying really hard that things get better and better and that you will have many more days at home without hospitilisation again 🙂 May Aria continue from strength to strength! Sorry to hear about the passing of Meme but he is safe and pain free in Jesus’ precious loving arms. Our prayers are with his family and friends. Yay for Christine arriving on Tuesday … hope the children have LOADS of fun with their Nana and that Aria really gets to ENJOY the special times with her 🙂 God bless all of you xx
# 8 Jan at 7:32 am
Such wonderful news today. I have prayed for these things and sure enough God never fails. His way may not be our way but he knows best. It will be good to have family there with you all so enjoy.I pray each day will get smoother and fewer bumps along the way to complete healing. May you soon be back home again to all your family and friends and also the trip to Disney.
# 8 Jan at 11:45 am
Great to continue to hear of the good progress Aria is making. We will be praying for you all at Redeemer today.
In Christ
Tony
# 8 Jan at 7:26 pm
Home sweet home for Aria and what a gift! her Nana to be with you all halleluia for wonderful news and that sleep will come easy for Aria and for all of you amen. Pray for Meme’s family to find comfort in the Lord and in one another amen.
# 8 Jan at 9:24 pm
Thrilled to hear that everything is settling down once more. Wonderful to have Nana arriving. Love to all and take care. Jan
# 8 Jan at 9:38 pm
Such great news – how lovely for you all to have Christine back with you again! I’m sure you will have a quiet time here on the website while you get to enjoy having familiy time again.