Yeast
Aria is back in hospital and this time is actually pretty unwell. Â She was a bit off yesterday and at 5pm she had a low grade fever and was asleep on the couch. Â And her outputs had been really high. Â So we called the team and they didn’t hesitate to bring her in. Â And of course we are glad she is here because that night her heart rate got up to 205 and her temp spiked higher.
Turns out she has yeast and gram positive bacteria in her blood and line. Â Pretty bad. Â BUT we are kinda relieved it isn’t her Puesdomonas back, that would be bad. Â At least this is treatable and doesn’t signal future problems. Â To be honest we are not surprised. Â It has been impossible to keep her central line dressing on with her skin being so peely and gross. Â It just won’t stick so the bugs could easily had tunneled thru the skin and into the line.
And they are planning an extensive scope tomorrow under a GA. Â Looking top and bottom at her intestine just to make sure that her high outputs can still be blamed on the Norwalk virus. Â We are really happy they are wanting to do this, it is the right thing but it has brought up some super tough emotions. Â It feels like a massive test of faith and in fully trusting this transplanted bowel to God and giving it over to Him. Â It was a gift from Him (and our donor family) and HE will do a work in it. Â He gave it and He can take it and He would still be Good. Â BUT in our heart of hearts we really don’t believe that His plan is to take this bowel. Â God has done such an amazing work in Aria’s life we can only conclude He will continue as that has been His leading.
Finally got a peripheral line in Aria’s hand. Â It took 6 stabs and she was amazing. Â Her skin is still tough and hard so it was tricky. Â Aria was so amazing, partly because she isn’t really well so didn’t put up much fight. Â At the end she said ‘thank you everybody’. Â Next they will remove her central line which here involves yanking it out with a hard pull. Â Kinda scared about that, seems pretty rough, don’t remember them doing it like that at Starship. Â But better than a GA I guess….
Anyway Asher is also sick. Â Got a vomiting bug which maybe Aria has picked up too which might explain the increased output. Â Or the yeast could too…..
Tough day for sure.
22 Responses to “Yeast”
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# 6 Mar at 3:12 pm
“Thank you everybody.” What a sweetheart. So sad you are back… praying for you and all the hands that are taking care of Miss Aria. You guys are incredible.
# 6 Mar at 3:13 pm
Oh guys. Sending you love and strength from across the oceans.
Ali xoxo
# 6 Mar at 3:15 pm
Eek, so sorry to read things a tough right now, and doubly hard with Aria in hospital and Asher not well at home. Hoping the answers bring easily resolved issues – and hoping you are all back together real soon xxxxx
# 6 Mar at 3:26 pm
We are with you guys. XOXO
# 6 Mar at 3:31 pm
Praying much for this difficult situation.
# 6 Mar at 3:41 pm
Sorry to hear this, praying for you all, praying for answers and good outcomes. Lots of love to you all. xoxo
# 6 Mar at 3:53 pm
Oh dear what a journey but many of us are doing it with you. You are just so much in my thoughts a prayers that is for sure. Stay strong, which you are. Love to all Jan
# 6 Mar at 4:13 pm
So sorry to hear this. Hope it will soon improve. Hope Asher is soon over his bug xx
# 6 Mar at 4:41 pm
I am glad they are having a good look at Aria now, part of answers to prayers and amen to all the prayers and desires of your dear hearts as we together put our trust in God. God is sooo goood and sooo faithful, we ask Him to cover Aria and yourselves and all the medical staff and all who has interest in Aria, Lord Jesus cover us all with His precious blood and in the mighty Name of Jesus our Lord and King all will be well amen, amen, amen. (a prayer of agreement with you all) praise God amen. Hope Ashe is getting over his cold and that he too be healed in Jesus’ Name amen.
# 6 Mar at 5:11 pm
Just saying I am praying for all of you.Keep the faith and let God do his work in all of this.He has a plan and his will shall be done.May answers and healing come soon for all and rest for you.
# 6 Mar at 5:26 pm
Aria is such a sweetheart. Sorry to hear that she’s sick! Sorry to hear that Asher’s sich too! Hope they both feel better soon! Praying for all of you! God Bless!
# 6 Mar at 5:39 pm
I hear how hard it is for you. sometimes it is hard to just let go and believe from your heart it will be all right, that head just takes over and says ‘what if’. But if in your heart you believe and have faith then follow that feeling. It’s hard work otherwise. The ups and downs are huge at this stage and you are under so much stress still and sleeplessness. I truly feel for you all. Lara doesn’t even remember being in hospital now (Iasked her!), and this is even tho she was in last year for chicken pox. Amazing what kids will put behind them once they are well – just remember that! Take care and lots of hugs xxx
# 6 Mar at 6:08 pm
You are an amazing family. I do feel so much for you. Thank you for the inspiration you are to me, your faith is so encouraging. I don’t think I could walk the path you are on ……. but I know God would be with me if I were, as He is with you.
I pray for strength, peace, health, deep refreshing sleep and comfort from our God, who is able to do so much more than we ask of Him. Ephesians 3:20 (NIV)
“Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us,”
With my love and prayers ……. God bless you all in a mighty way as only He can.
Eve
# 6 Mar at 6:16 pm
Dear heavenly Father, please oh please bring Aria through this ordeal with wings on, and please lay your healing hands on little Asher as well. Please hold Anita and Hamish tightly in your ever loving strong arms. I ask this in Jesus’ name-Amen
# 6 Mar at 6:40 pm
will pray for these precious wee darlings,god bless you all,chrissy
# 6 Mar at 6:50 pm
Dear Lord, may you continue to hold this special family safe in your arms. Jesus, our great Healer, we believe You and in You. Please heal Aria – in Your time we accept, but please may she be fully well and come home to New Zealand when that time is right. Our country needs this special family home. Amen.
# 6 Mar at 8:17 pm
And an amen to the above from me x
# 6 Mar at 8:33 pm
Wish I could just put my arms around you, give you a big hug, weep with you and hold onto the Lord together. Moment by moment may you be kept in His love and know His calm and peace amidst the storm. Nola
# 6 Mar at 9:44 pm
I have not had internet for a month, so been missing Arias progress, get well Prince Asher and Princess Aria xx
# 7 Mar at 1:08 am
Kia Ora 🙂 Praying that Aria heals quickly and you are all in our thoughts and prayers everyday. Praying that little Asher gets over his bug soon too 🙂 Blessings xx
# 7 Mar at 1:35 am
We pray you will know the closeness of the Lord and his sustaining love and never ceasing faithfulness at this time. I pray for healing and refreshing for your whole family at this time. xx
# 7 Mar at 2:34 am
Oh how tough…. really with you and can hear how hard it is…. may you all know strength…. for each moment…. would love to chat some time. Much love. X