Quiet day
Today was a quiet day. Â That’s ok. Â Aria’s fluid balance was positive 900 mls which means she was puffy today and her weight was up. Â So as a result she didn’t make much progress on the vent due to more fluid around her lungs. Â But she did response to the med to make her pee and shifted about 400 mls.
Later this evening her temp can up to 38 which isn’t good, hoping it doesn’t go higher. Â We really need to get on top of these bugs.
Today we said goodbye to Erika and Emerson.  They are heading home to Colorado today which is super exciting for them.  Unfortunately for me I am saying goodbye to a friend.  Erika and I spend many hours talking in various parts of the hospital at various times, going to miss that.  True friends are hard to find, more so ones who understand first hand what you are going thru.  Thank you Erika, you are an amazing lady with an equally amazing daughter!
Today we also found out we are going to be saying Hello to our lovely texan friends soon. Â Unfortunately in our medical world it may be under less than ideal circumstances. Â Our Caed needs our prayers and his mom and dad do too.
Lots of emotions today! Â God hears our hearts.
10 Responses to “Quiet day”
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# 10 Jun at 8:59 pm
Thinking of you all so much. And praying. May God always bring you a listening ear and genuine friendship when you need it. God does indeed hear our hearts.
# 10 Jun at 9:07 pm
I am always totally amazed at your strength & optimism with each report I read. I am not a religious person but can’t help but be inspired by your faith. You are an amazing family. Love to you all.
# 10 Jun at 10:40 pm
I ditto what Chris says above. I am a Grandma too & feel your pain. Luv M x
# 10 Jun at 10:45 pm
Anita & Hamish I believe your story is being followed by more people than you realise. You have been blessed with the ability to write straight from the heart. Through this blessing, those of us following your story are able to empathise with you and your family. Never feel you are alone. Your faith, love and courage are a phenomena – a tremendous inspiration to all of us. Thank you for keeping us updated even in times when writing must be the last thing you feel like doing. I endorse what Chris has said – you ARE an amazing family – and you are very much loved.
# 10 Jun at 11:43 pm
I also agree with Chris…. I too am inspired by your faith even though I managed a spectacular fall out of church 18 years ago and haven’t headed back. And, I do really believe you have your faith in the right place. I just can’t see how Aria could have come so far without His help! Hope tomorrow is a much better day. Love to you MacDonalds! xxxxx
# 11 Jun at 12:14 am
Hi Anita and Hamish,Christine and Ashe,
Hi princess Aria,
You are reminding me once again your special verse “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you HOPE and a FUTURE” And a scene is coming to me of Jesus putting out everyone and healed that young girl, saying “Talibah get up” I see you so need your faith strengthened and fed and I know that you need your faith right now as so much and so many things are happening all around you. Have faith nothing is impossible with our God!!! ARIA needs you right now so put on the garment of praise and the Spirit of joy dear ones. Lift up your voice to God, Sing with the Spirit and with understanding oh magnify the Lord.
Youve exchanged my curses for blessings!
Youve traded my sickness for health!
You removed all my sins with forgiveness!
And supply all my needs from your wealth!
For my hatred, youve given your perfect love!
And Peace instead of my strife!
The death that you died gave me Life!
Galvary, were set Free!
By your Blood we have been Redeemed
Galvary, Liberty!
He has conquered! WE HAVE VICTORY!
AMEN, AMEN, AMEN.
LOVE YOU HEAPS ARIA N FAMILY, REJOICE I SAY REJOICE!
# 11 Jun at 3:26 am
I totally agree with what everyone has said. You have a special way of writing that enables us to understand what you are going through. So many people love and care about Aria and your family. You are all so amazing. Thanks for keeping us updated. Love and prayers to you all. Keep fighting Aria! God Bless.
# 11 Jun at 4:52 am
There’s something about the honesty in the comments above that makes me want to add that I’m also inspired by your faith, even though I don’t have it myself. I love that you share things so directly and so very much from your heart. I check in often and think of you a lot. You are SO brave and so strong, as is Aria. Xxx
# 11 Jun at 6:48 am
Iliganoa said it so beautiful. I do believe as he does and trust God to complete his plan. No one can change that as HE is in control. Praying for your needs today and that Aria may have a good day.
# 11 Jun at 1:49 pm
I will, of course, keep praying for Aria! Sorry that you are saying goodbye to some friends, but I’m sure you’ll be able to write each other. Glad that you will be meeting some new friends, though! God does hear your prayers, & I’m know they are dear to His heart! God Bless!