Darkness - Aria MacDonald

Darkness

In case you missed Hamish’s post yesterday I will leave it at the bottom of the page.

I was thankful he updated as I spent most of the evening crying and feeling pretty sick.  It has been a long time since I have felt that awful.  Two times spring to mind, Aria’s diagnosis on the 16th of June and the day we got the news of her small kidneys.

The elders  and pastors are coming over to pray for Aria at 7.15 pm today. Please, if you find the time could you pause and also do the same.

We are still planing to leave on the 1st of December.  It might come down to the wire but we will not give up.  We will do anything to fight for our girls life and for every breath until God takes her.

We have been reassured the MoH knows of Aria’s declining health and the urgency of the situation.  We are going to most likely contact our local MP to see if he can help.  Of course I really wish we lived in the Bay of Plenty who have the Health Minister Tony Ryall for their local MP!  We are not contacting the media at this stage cause that is the last thing we want to do

Our pastor came over at 10.30pm last night as soon as he got Hamish’s email requesting the above prayer for Aria.  He said, and we agree, we don’t know what God’s plan for Aria is.  But we know He is GOOD.  We have a good God who loves us and gave His son for us.  The very thing that is currently breaking our heart, the thought of losing our daughter.

Aria’s had an unsettled night.  She keeps asking to go back to Star and telling us she has a sore back.  But her temp is ok.  Not sure she will make Preschool today but we will see.  Her HB is 97 which is pretty good a nice jump up.  But her bili is 345, another big jump up hence the concern of everyone.

Please pray for us.  Your positive and encouraging comments mean a huge amount.  To know people are standing with us is God’s gift to us right now.

17 Responses to “Darkness”

  1. Cath O'Brien says:

    Email Tony Ryall. Make sure he knows what is going on. Ask him why the decision is taking longer, and make sure he understands what delay and inefficiency could cost. I would email him myself but better it comes from you?

    Thinking of you.

  2. Josie says:

    For our struggle is not against flesh and blood, but against the rulers, against the authorities, against the powers of this dark world and against the spiritual forces of evil in the heavenly realms. Therefore put on the full armor of God, so that when the day of evil comes, you may be able to stand your ground, and after you have done everything, to stand. Stand firm then, with the belt of truth buckled around your waist, with the breastplate of righteousness in place, and with your feet fitted with the readiness that comes from the gospel of peace. In addition to all this, take up the shield of faith, with which you can extinguish all the flaming arrows of the evil one. Take the helmet of salvation and the sword of the Spirit, which is the word of God. And pray in the Spirit on all occasions with all kinds of prayers and requests. With this in mind, be alert and always keep on praying for all the saints.
    Ephesians 6:12 – 18

    “For I am convinced, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come,neither height nor depth, nor anything else in all creation, will be able to separate us from the Love of God that is in Christ Jesus our Lord”
    Romans 8:37-39

  3. Ali/nerdygirl says:

    I am gutted. I can’t imagine how you feel. What is their reasoning behind the delay? I agree with Cath, I would be sending Tony Ryall daily updates on Aria!! Make her situation present in his mind! If there is anything you need, please ask.

    Always, always thinking of you.

    Ali xoxo

  4. Steph van Garderen says:

    Continuing to pray earnestly for you and for Aria. May His peace and love surround you at this time as you continue to trust in Him and His purposes.
    xxxxxxxxx

  5. Jessica says:

    Oh ANita I can only imagine how this all feels. Am thinking of you and Aria always.

  6. Sarah says:

    Praying for all of you from Sarasota, Florida USA. Aria is an amazing little girl and has touched my heart with her fighting spirit. God bless all of you.

  7. EVE GILKES says:

    Dear Anita, Hamish, Aria and Asher,
    At our church meeting this evening we prayed for you all, especially Aria, for God’s healing touch, and for the money that is needed.
    We sang this hymn from ‘the source’ hymn book. It is number 493.
    The words are ..”There is none like You,
    no one else can touch my heart like You do.
    I could search for all eternity long
    and find there is none like You.
    Your mercy flows like a river wide,
    and healing comes from Your hands.
    Suffering children are safe in Your arms;
    there is none like You.”
    I immediately thought of Aria as we sang lines 5,6, and 7.
    God bless you, comfort you, give you peace and uphold you.
    Eve (from England)

  8. Katherine says:

    Praying to Him who can do immeasurably more than we ask or imagine, in whose hands the king’s heart (well MOH in this case) sits.

  9. Linda says:

    Poem: Believe In Your Heart
    I woke up one night in the hours of darkness, I sat up straight in my bed to find a shimmering light in my closet, But there were no lights on in the room, I got up and went slowly toward the closet, To find a pair of gold wings, An angel was standing by my side,

    “What do I do with these gold wings?” I asked the angel
    “Put the wings on my child.” Answered the angel

    I put the wings on and flew to a place that had many stars, The angel then appeared and said, “Follow your heart, your goals and your dreams.” Only you know what is right for you. Anything is possible, Miracles do come true, Hope and dreams are a reality if you let them be, Life can be wonderful if you let it be.

    Hi Hamish and Anita – you have such strong faith and strength and while you may question your strength to cope at times know that you are truly supported by so many even if at this stage you are not getting the critical answers from health agencies. I will be writing to Tony Ryall to highlight Aria’s critical need. Lots of love Linda C.

  10. Bill & Delwyn says:

    Hi Hamish and Anita. Our hearts go out to you at this time. We also pray with you that the funding will become available in time. Let us know if there is anything we can do. God bless you all at this time as you wait. Be aware that many, many people care and are upholding you in prayer.
    Love from Bill and Delwyn

  11. Neala says:

    You may not know this… or care… but I’m not the praying sort. But my heart goes out to you… please accept my small contribution as a token of all the love and support we feel. Neala, Ellis & Rowan.

  12. Samantha Sutherland says:

    Sweethearts, I will be praying with you and for you tonight.

  13. Susan says:

    definitely praying 4 u guys!!! Aria is a special girl and nobody knows that more than God.

  14. Ruth says:

    Just want to echo the thoughts and prayers of those above! Sincerely praying for you all and trusting in our God who is bigger and more powerful than we can imagine and holds the plans to the universe as well as to your lives in His hands. Amazing! He cares and He walks beside you Now! xx

  15. Judy Palmer says:

    Just read your post. I certainly am praying for you all at this trying time. Be assured God is with you whatever happens and be thankful for the three years you have already had with Aria and look forward in faith to the years you will have (I am sure) with her and Asher. Love and prayers to you all, Judy.

  16. Tiffany says:

    I don’t know what to say today. So here is a hug from me, on the other side of the world, in Michigan. HUG!

  17. Christine says:

    Hi Anita and Hamish,

    I’m very sad to hear about Aria’s worsening health but even sadder the MoH is making the situation even harder. I’m not much of a prayer but I am a writer, so if you would like someone to organise a letter-writing campaign to your Health Minister, the PM and anyone else appropriate, am more than happy to help. 🙂

    Hope good news comes your way soon!!

    Best wishes
    Christine

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“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.”- Jeremiah 29:11